Evidence map›Paper›PMID 40579751›Full record

SynthesisNursing open2025

Caregiving Experiences of Caregivers of Adolescents With Inflammatory Bowel Disease: A Qualitative Meta-Synthesis.

Huan Xu, Chao Wu, Changchang Chen, Bo Yan, Ning Zha, Kai Zhang, Fang Liu, Hongjuan Lang

Abstract readSystematic Review
In one paragraph

Synthesis in Nursing open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Psychosocial Burden of Adolescent Idiopathic Scoliosis: A Systematic Review and Meta-Synthesis of Patient and Caregiver Perspectives.Health expectations : an international journal of public participation in health care and health policy · 2026
    Pooled it
  2. Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Huan XuSchool of Nursing, Shaanxi University of Chinese Medicine, Xianyang, China.ORCID https://orcid.org/0009-0002-5095-8164
Chao WuDepartment of Nursing, Air Force Medical University School of Nursing, Xi'an, China.
Changchang ChenDepartment of Nursing, Air Force Medical University School of Nursing, Xi'an, China.
Bo YanDepartment of Nursing, Air Force Medical University School of Nursing, Xi'an, China.
Ning ZhaDepartment of Nursing, Air Force Medical University School of Nursing, Xi'an, China.
Kai ZhangDepartment of Nursing, Air Force Medical University School of Nursing, Xi'an, China.
Fang LiuSchool of Nursing, Shaanxi University of Chinese Medicine, Xianyang, China.
Hongjuan LangDepartment of Nursing, Air Force Medical University School of Nursing, Xi'an, China.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundInflammatory Bowel Disease (IBD) is a chronic condition that significantly affects the physical and mental health of adolescents. Caregivers are crucial in the treatment process, offering both physical care and emotional support. Caring for adolescents with IBD can significantly affect caregivers' physical, psychological and daily lives, presenting a range of emotional, financial and practical challenges.

aimsTo explore and integrate the caregiving experiences of caregivers of adolescents with IBD, in order to inform future caregiving support and intervention strategies.

designA systematic evaluation and synthesis of qualitative studies was conducted based on ENTREQ guidelines.

methodsA systematic search was performed in PubMed, Embase, Cochrane Library, Web of Science, CINAHL, PsyINFO, CNKI, Wangfang and VIP for qualitative studies on the caregiving experiences of caregivers of adolescents with IBD, from the start of the research until March 14 2025. The quality of the literature was assessed using the Joanna Briggs Institute's quality assessment criteria for qualitative research, and included studies were integrated using a pooled approach.

resultsIn total, nine studies were included, from which 69 themes were extracted. The findings were grouped into five main themes and 12 subthemes: Psychological and emotional challenges; Heavy caregiving burden; Multiple challenges; Indispensable external support; Positive progress.

conclusionsCaregivers of adolescents with IBD face numerous challenges. Healthcare professionals should recognise the varied needs of these caregivers and develop tailored support programmes to help alleviate psychological stress and enhance caregiving quality. Additionally, the Internet and community platforms can be utilised to establish a family support system, ensuring the well-being of both caregivers and adolescents. NO PATIENT OR PUBLIC CONTRIBUTION: This study is a meta-synthesis and does not require relevant contributions from patients or the public.

trial registrationPROSPERO number: CRD 420250654435.

Indexed as

CaregiversInflammatory Bowel DiseasesAdaptation, PsychologicalAdolescentHumansQualitative ResearchStress, Psychologicaladolescentcaregiverinflammatory bowel diseasemeta‐synthesisqualitative research

Identifiers

PMID40579751
PMCPMC12204846

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.