Evidence map›Paper›PMID 40576865›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2025

Improving quality and safety of cancer care for people from ethnic minority backgrounds: what do consumers want?

Bronwyn Newman, Ashfaq Chauhan, Thit Tieu, Margo Van Poucke, Carlene Wilson, Ramesh Lahiru Walpola, Elizabeth Manias, Holly Seale, Desiree Leone, Allan Ben Smith and 3 more

Erratum issuedAbstract read
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In one paragraph

Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

13 authors.

Bronwyn NewmanCentre for Health Systems and Safety Research, Australian Institute of Health Innovation, Macquarie University, Macquarie Park, NSW, Australia. bronwyn.newman@mq.edu.au.
Ashfaq ChauhanCentre for Health Systems and Safety Research, Australian Institute of Health Innovation, Macquarie University, Macquarie Park, NSW, Australia.
Thit TieuCanEngage Consumer Group, Centre for Health Systems and Safety Research, Australian Institute of Health Innovation, Macquarie University, Macquarie Park, NSW, Australia.
Margo Van PouckeCentre for Health Systems and Safety Research, Australian Institute of Health Innovation, Macquarie University, Macquarie Park, NSW, Australia.
Carlene WilsonMelbourne School of Population and Global Health, University of Melbourne, Carlton, VIC, 3053, Australia.
Ramesh Lahiru WalpolaSchool of Health Sciences, UNSW Sydney, Kensington, NSW, Australia.
Elizabeth ManiasSchool of Nursing and Midwifery, Monash University, Clayton, VIC, Australia.
Holly SealeSchool of Population Health, UNSW Sydney, Kensington, NSW, Australia.
Desiree LeoneMulticultural Health Services, Western Sydney Local Health District, North Parramatta, New South Wales, Australia.
Allan Ben SmithThe Daffodil Centre, The University of Sydney, a joint venture with Cancer Council NSW, Camperdown, NSW, Australia.
Melvin ChinMedical Oncology, Prince of Wales Hospital, South Eastern Sydney Local Health District, Randwick, NSW, Australia.
Nadine ElkabboutCanEngage Consumer Group, Centre for Health Systems and Safety Research, Australian Institute of Health Innovation, Macquarie University, Macquarie Park, NSW, Australia.
Reema HarrisonCentre for Health Systems and Safety Research, Australian Institute of Health Innovation, Macquarie University, Macquarie Park, NSW, Australia.

Funding

National Health and Medical Research Council 1180925
6 · The paper itself

Abstract

objectivesPeople from ethnic minority backgrounds have increased likelihood of poor care quality and outcomes than the general population when accessing cancer care. Consumer-centric solutions are required to address these inequities. We explored the views of people from ethnic minority backgrounds on key issues impacting their cancer care and outcomes, including strategies to enhance care.

designQualitative semi-structured interviews were conducted to collect experiential data from people from diverse backgrounds who had accessed cancer care. All recorded interviews were transcribed verbatim, and one was included with notes only. Thematic analysis was conducted, with initial coding by two researchers and themes further developed by all authors.

resultsInterviews were conducted with 19 consumers, including six patients and 13 support persons who had accessed cancer care from hospitals in NSW and Victoria, Australia. Participants were from diverse cultural backgrounds including Vietnamese, Chinese, Iraqi and Filipino, and nine interviews were conducted with language support. Consumers indicated that cancer services need to develop flexible care systems to improve care, expressed through three themes: (i) considering language and culture, (ii) establishing communication and (iii) accommodating difference.

conclusionCurrent practices leave people from ethnic minority backgrounds more vulnerable to compromises in quality and safety of care. Involving people from ethnic minority communities relevant to the local area in service design and evaluation is essential to inform practice change. Further consideration is required to address resourcing issues and provide governance support to enable care that is flexible and equipped to respond to varied language and cultural support needs.

Indexed as

EthnicityMinority GroupsNeoplasmsQuality of Health CareAdultAgedCommunicationFemaleHumansInterviews as TopicLanguageMaleMiddle AgedNew South WalesQualitative ResearchQuality ImprovementCancer careEthnic minorityPatient engagementPatient participation

Identifiers

PMID40576865
PMCPMC12204909

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.