ReviewBehavioral sciences (Basel, Switzerland)2025
Within My Walls, I Escape Being Underestimated: A Systematic Review and Thematic Synthesis of Stigma and Help-Seeking in Dementia.
Review in Behavioral sciences (Basel, Switzerland), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Navigating the Threshold: Barriers and Facilitators to Accessing Primary Care Among People Living with Dementia-A Systematic Review and Meta-Synthesis.International journal of environmental research and public health · 2026Pooled it
- Primary care determinants for timely diagnosis of dementia.Family medicine and community health · 2026Article
- Formal help-seeking intentions for dementia in the Australian public: associations with stigma.Health promotion international · 2026Article
- Evaluating the Psychometric Properties of the Indonesian Version of the Stroke Stigma Scale Among Indonesian Stroke Survivors.International journal of environmental research and public health · 2026Article
- The word Dementia should be retired.Communications medicine · 2026Article
- Unmet social needs of community-living older adults with dementia: A scoping review.Journal of Alzheimer's disease : JAD · 2026Article
- Sex differences in the associations between illness representations and behavioral intentions to seek early Alzheimer's detection in Chinese older adults.BMC geriatrics · 2026Article
- Development of a Prediction Model for Community-Dwelling Older Adults at Risk of Long-Term Care with Dementia.Geriatrics (Basel, Switzerland) · 2026Article
- I'm still here and my opinion matters: a scoping review on the experience of epistemic injustice among people living with dementia.Current psychology (New Brunswick, N.J.) · 2026Article
- Information and education for informal dementia caregivers: the Age-it project.Frontiers in public health · 2025Article
- "I wasn't broken": Addressing stigma associated with dementia while Walking the Talk for Dementia.Alzheimer's & dementia (Amsterdam, Netherlands)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
Abstract
Dementia-related stigma significantly influences help-seeking and affects the quality of care and support received by people with the condition. This review examines the impact of stigma on help-seeking among people with dementia and identifies key factors influencing this relationship. A systematic search across Web of Science, CINAHL, PsycINFO, PubMed, and Scopus identified seventeen qualitative studies that met the inclusion criteria. These criteria encompassed studies focusing on individuals aged 60 and older addressing public- or self-stigma and exploring help-seeking behaviors and related influencing factors. A thematic synthesis was employed to analyze the findings. The following five major themes emerged: reluctance to disclose the condition, internalization or rejection of stigmatizing beliefs, influence of family and community, attitudes of healthcare professionals, and lack of awareness in the broader society. Factors such as psychological decline, loss of autonomy, limited service access, peer support, and need for policy-level intervention were identified as central in shaping stigma. Findings related to the factors that influence this relationship indicate that stigma delays diagnosis and treatment, restricting access to adequate care. Both individual (e.g., autonomy, psychological well-being) and contextual (e.g., social networks, public policies) factors are crucial in moderating this dynamic. Targeted interventions addressing these dimensions are urgently needed to reduce stigma and facilitate timely help-seeking in dementia.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.