Evidence map›Paper›PMID 40562962›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2025

Factors influencing engagement in survivorship care among young adult survivors of hematologic malignancies: a mixed methods report.

Melissa P Beauchemin, Rachel Murphy-Banks, Angie Mae Rodday, David R Freyer, Kimberly A Miller, Emma Fleisher, Timothy J D Ohlsen, Nadine Linendoll, Randall Y Chan, Howland E Crosswell and 2 more

Registry-linked trialAbstract readMulticenter Study
PubMed Publisher
In one paragraph

Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05620979 (Evaluating the Role of Financial Navigation in Alleviating Financial Distress Among Young Adult Survivors of Blood Cancer), which is not on this map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05620979 nacompletednot on this map

Evaluating the Role of Financial Navigation in Alleviating Financial Distress Among Young Adult Survivors of Blood Cancer

TypeinterventionalSponsorTufts Medical CenterRan2022 to 2023Enrolled130ConditionsSurvivorship, Cancer, Financial StressArmsProviding financial navigation via active navigation, ad hoc navigation or no study-based navigation.
3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Melissa P BeaucheminColumbia University School of Nursing, New York, NY, USA. mmp2123@cumc.columbia.edu.
Rachel Murphy-BanksDivision of Hematology and Oncology and Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA, USA.
Angie Mae RoddayInstitute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA, USA.
David R FreyerDepartments of Pediatrics, Medicine, and Population and Public Health Sciences, Cancer and Blood Disease Institute, Children's Hospital Los Angeles, Los Angeles, CA, USA.
Kimberly A MillerDepartment of Population and Public Health Sciences, Keck School of Medicine of the University of Southern California, Los Angeles, CA, USA.
Emma FleisherInstitute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA, USA.
Timothy J D OhlsenDivision of Pediatric Hematology/Oncology and Bone Marrow Transplant, Seattle Children's Hospital, University of Washington, Seattle, WA, USA.
Nadine LinendollDivision of Hematology and Oncology and Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA, USA.
Randall Y ChanDepartment of Pediatrics, Los Angeles General Medical Center, Los Angeles, CA, USA.
Howland E CrosswellAYA Cancer Care Program, Bon Secours Mercy, St. Francis Cancer Center, Greenville, SC, USA.
Michael E RothDepartment of Pediatrics Patient Care, Division of Pediatrics, University of Texas MD Anderson Cancer Center, Houston, TX, USA.
Susan K ParsonsDivision of Hematology and Oncology and Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA, USA.

Funding

Tumor Evolution and Metastasis ProgramP30CA016672 · NCI · UNIVERSITY OF TX MD ANDERSON CAN CTR · PI Scott Kopetz · 1985 to 2026
$290.8M
USC/NORRIS COMPREHENSIVE CANCER CENTER (CORE) SUPPORTP30CA014089 · NCI · UNIVERSITY OF SOUTHERN CALIFORNIA · PI Fumito Ito · 1985 to 2026
$181.4M
Institutional Career Development CoreKL2TR001874 · NCATS · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI GENKINGER, JEANINE M., SHIMBO, DAICHI · 2016 to 2025
$13.6M
Leukemia and Lymphoma Society PHS9005-21NCATS NIH HHS KL2TR001874NCI NIH HHS P30CA014089NCI NIH HHS P30CA016672
6 · The paper itself

Abstract

purposeLong-term survivors of childhood, adolescent, and young adult cancer are at risk for treatment-related late effects; therefore, survivorship care is essential. We explored the survivorship experience among young adult survivors of hematologic malignancies participating in a multi-institutional financial navigation trial.

methodsWe conducted a secondary analysis using a mixed-methods, qualitative-dominant approach. Analysis was restricted to participants who completed an end-of-study interview. Baseline quantitative survey data related to survivorship care and engagement were included. Interview transcripts were analyzed using directed content analysis and inductive reasoning. Themes related to survivorship care were reviewed and further examined as factors influencing survivorship care engagement.

resultsThe 45 participants' median age was 31.5 years (Q1 = 28, Q3 = 35), with more than half (57.2%) identifying as Asian, Hispanic, or other non-Hispanic non-White. Median time since their blood cancer diagnosis was 9 years (interquartile range 6-18). During baseline assessment, 45.2% of participants reported having a treatment summary and 50.0% were currently receiving survivorship care. Most (83.3%) felt they had received all recommended care within the previous year; however, 50.0% reported delaying or foregoing care due to cost. Nearly half referenced engagement in survivorship care during their interview. Factors serving as catalysts or barriers that influenced care engagement included late effects, mental health concerns, cost of care, and travel logistics for continued care at specialty centers.

conclusionYoung adults' survivorship engagement is influenced by varied factors long after diagnosis. These findings emphasize the importance of tailoring information delivery and interventions to meet the needs of this growing population.

trial registrationNCT05620979, registered/posted on 11/17/2022.

Indexed as

Cancer SurvivorsHematologic NeoplasmsSurvivorshipAdolescentAdultFemaleHumansMaleQualitative ResearchYoung AdultBarriers to careCare engagementSurvivorship careYoung adult

Identifiers

PMID40562962

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.