Evidence map›Paper›PMID 40562944›Full record

ArticlePediatric cardiology2026

Supporting the Journey: A Scoping Review of Healthcare Transition Programs for Adolescents with Congenital Heart Disease.

Authors Jordyn Britton, Lindsey Szymanski, Anitha John

Abstract readScoping Review
PubMed Publisher
In one paragraph

Article in Pediatric cardiology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Review
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Authors Jordyn BrittonDepartment of Cardiology, Children's National Hospital, Washington, DC, USA. jordyn999@gmail.com.
Lindsey SzymanskiDepartment of Cardiology, Children's National Hospital, Washington, DC, USA.
Anitha JohnDepartment of Cardiology, Children's National Hospital, Washington, DC, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The growing adult CHD population has created a demand for formalized transition programs from pediatric to adult cardiac care. Despite global implementation, these programs vary widely in structure, and there is limited understanding of which elements best improve clinical outcomes and quality of life. This scoping review of the literature on healthcare transition programs for children and adolescents with CHD examined various program models, identified common key concepts, and highlighted gaps in the field, providing future directions for research and program development. A comprehensive search of PUBMED/Medline, Scopus, CINAHL, and Cochrane Library (2017-2023) identified English-language original research on CHD transition programs reporting qualitative or quantitative outcomes. Outcomes were grouped into themes: medical knowledge, self-management, and successful transfer. Ten studies met the inclusion criteria. All seven studies reporting medical knowledge outcomes found an increase in patients' medical knowledge following program completion, though methods of measurement varied. Four studies reported successful transfer outcomes, while five demonstrated improvements in self-management skills. Several studies also included patient reported outcomes. While various healthcare transition models exist, each with distinct strengths and weaknesses, it is important to customize the program to the needs of the local CHD patient population and the institution providing care. Advancing care for this group requires increased resources, improved reimbursement models, stronger infrastructure, and comprehensive education and training to encourage institutions to develop programs that meet patient needs.

Indexed as

Heart Defects, CongenitalTransition to Adult CareAdolescentHumansQuality of LifeAdolescentCongenitalHeart defectsTransition

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.