Evidence map›Paper›PMID 40562444›Full record

ArticleThe British journal of general practice : the journal of the Royal College of General Practitioners2025

'I think it is helpful … I mean it's not always helpful' - diagnostic complexity in endometriosis: a qualitative study.

Sharon Dixon, Emma Evans, Katy Vincent, Francine Toye, Abi McNiven, Lisa Hinton

Abstract read
In one paragraph

Article in The British journal of general practice : the journal of the Royal College of General Practitioners, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2026
    Article
  2. Often delayed and fractured, endometriosis care needs an overhaul.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Sharon DixonNuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK sharon.dixon@phc.ox.ac.uk.ORCID 0000-0002-7469-6093
Emma EvansNuffield Department of Women's and Reproductive Health, University of Oxford, Oxford, UK.ORCID 0000-0003-3991-9316
Katy VincentNuffield Department of Women's and Reproductive Health, University of Oxford, Oxford, UK.ORCID 0000-0001-9249-2492
Francine ToyePhysiotherapy Research Unit, Oxford University Hospitals NHS Foundation Trust, Oxford, UK.ORCID 0000-0002-8144-6519
Abi McNivenNuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK.ORCID 0000-0001-5041-2095
Lisa HintonNuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK.ORCID 0000-0002-6082-3151

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundEndometriosis affects approximately 10% of those assigned female at birth. Diagnostic journeys can be complex. The average 8-9 years between presenting symptoms and diagnosis has not changed significantly despite guidance.

aimTo explore primary care clinicians' diagnostic considerations in the context of symptoms that suggest possible endometriosis. DESIGN AND

settingQualitative semi-structured interviews with general practice clinicians working in England.

methodWe report a further analysis of 56 interviews from two inter-linked datasets with GPs and primary care clinicians about supporting patients with symptoms aligned with endometriosis. Analysis was informed by sociologies of diagnosis and ambivalence.

resultsClinicians valued the importance of diagnoses to patients. Diagnoses support longitudinal care throughout episodes of intermittent specialist input, anticipating and responding to current and future health needs, and delivering evidence-based (biomedical) medicine. Diagnoses help clinicians feel more confident and comfortable, and may confer protection from medicolegal risk. Clinicians balanced these considerations against known uncertainties, including recognition that diagnosis might not change the treatment offered, may not be accessible if empirical trials of treatment relieve symptoms, and that an endometriosis diagnosis may not enable individualised advice or risk prediction. Potential advantages were balanced against diagnostic test risks and system pressures. Recognising that patient care remains with them, GPs anticipate and actively ensure ongoing relationships and care, whatever the outcome of tests. Holding these opposing role- based priorities and expectations in parallel creates tensions, which can be characterised through the concept of sociological ambivalence.

conclusionDiagnostic considerations are complex. Educational interventions that do not recognise this may be ineffective in improving or enabling endometriosis diagnostic care journeys.

Indexed as

EndometriosisGeneral PracticeAttitude of Health PersonnelEnglandFemaleHumansInterviews as TopicQualitative Researchdiagnosisendometriosisgeneral practicesociological ambivalence

Identifiers

PMID40562444
PMCPMC12770855

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.