Evidence map›Paper›PMID 40548175›Full record

ArticleMayo Clinic proceedings. Digital health2025

A Model for Rapid Innovation for Engagement, Enrollment, and Data and Sample Collection in a Diverse Cohort Study: Insights from

Janna Ter Meer, Jessica Chen, Romina Foster-Bonds, Andrea Goosen, Gayle Valensky, Ethan Dinh-Luong, Rachele Peterson, Geoffrey Ginsburg, Chris Lunt, Vik Kheterpal and 4 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Mayo Clinic proceedings. Digital health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Janna Ter MeerScripps Research Translational Institute, Scripps Research, La Jolla, CA.
Jessica ChenScripps Research Translational Institute, Scripps Research, La Jolla, CA.
Romina Foster-BondsScripps Research Translational Institute, Scripps Research, La Jolla, CA.
Andrea GoosenScripps Research Translational Institute, Scripps Research, La Jolla, CA.
Gayle ValenskyScripps Research Translational Institute, Scripps Research, La Jolla, CA.
Ethan Dinh-LuongScripps Research Translational Institute, Scripps Research, La Jolla, CA.
Rachele PetersonAll of Us Research Program, Division of Program Coordination, Planning, and Strategic Initiatives, Office of the Director, National Institutes of Health, Bethesda, MD.
Geoffrey GinsburgAll of Us Research Program, Division of Program Coordination, Planning, and Strategic Initiatives, Office of the Director, National Institutes of Health, Bethesda, MD.
Chris LuntAll of Us Research Program, Division of Program Coordination, Planning, and Strategic Initiatives, Office of the Director, National Institutes of Health, Bethesda, MD.
Vik KheterpalCareEvolution, Ann Arbor, MI.
Eric TopolScripps Research Translational Institute, Scripps Research, La Jolla, CA.
Allison MandichAll of Us Research Program, Division of Program Coordination, Planning, and Strategic Initiatives, Office of the Director, National Institutes of Health, Bethesda, MD.
Yentram HuyenAll of Us Research Program, Division of Program Coordination, Planning, and Strategic Initiatives, Office of the Director, National Institutes of Health, Bethesda, MD.
Julia Moore VogelScripps Research Translational Institute, Scripps Research, La Jolla, CA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objective: To improve engagement and retention of a cohort that reflects the US population within the Participants and Methods: Results: We present a summary of APL processes and portfolio along with 5 specific initiatives that rapidly tested innovative ways to increase task completion and broaden biospecimen submission accessibility. Each initiative's cost-benefit profile was evaluated by a committee of program leadership. Findings include the following: (1) offering compensation increased task completion, the degree of which was dependent on the context and amount of compensation; and (2) adding evening and weekend blood donation appointment times and distributing saliva collection kits through community partners increased donations from participants who have been historically underrepresented in biomedical research. On average, program staff predicted initiative effect sizes would be more than double their actual effect. Conclusion: We found that large research studies can rapidly innovate to meet program goals, including a focus on diversity. We identified specific strategies and tactics to improve health research engagement and retention, with a focus on historically underrepresented in biomedical research communities, which can be used by numerous health research studies.

Identifiers

PMID40548175
PMCPMC12179602

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.