ArticleFrontiers in public health2025
Evaluating the burden of caregivers of patients with visual impairment: a multicenter pilot study in Italian visual rehabilitation centers.
Article in Frontiers in public health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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3 citing papers in PubMed.
- Changes in Caregiver Burden Following Cataract Surgery in Older Adults with Moderate-to-Severe Dementia: A Prospective Pilot Study.Geriatrics (Basel, Switzerland) · 2026Article
- Article
- The Evolving Landscape of Vision Rehabilitation: Current Status and Future Directions.Ophthalmic & physiological optics : the journal of the British College of Ophthalmic Opticians (Optometrists) · 2026Review
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11 authors.
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Abstract
Introduction: Despite growing evidence that underscores the importance of the caregiver's role in the rehabilitation process, visual rehabilitation (VR) programs often overlook these needs. The aim of this pilot study is to investigate the caregiving burden (CB) among informal caregivers of visually impaired (VI) patients who attend Italian VR centers, setting the bases for large-scale research. Methods: Four Italian VR centers were involved. Demographic data and IADL (Instrumental Activities of Daily Living Scale) questionnaire to assess the degree of autonomy of VI patients were collected. Regarding the caregiver, the Italian validated version of the "Caregiver Burden Inventory (CBI)" was administered. Results: Fifty patients and their caregivers were included. The mean total CBI score was 23.6 points (SD 18.4), which is about the threshold for abnormal stress score. Moreover, 9 (18%) caregivers had scores ≥39, suggesting burn-out or mental disorder. The time-dependent (rho = 0.88), developmental (rho = 0.93), and physical burden (rho = 0.87) domains demonstrated the strongest correlations with overall CBI score. Furthermore, each additional hour of caring increased the score by 1.07 points ( Conclusion: In this pilot study in VI patients attending VR services, about one half of caregivers of VI patients experienced stress, with 1 in 5-6 suffering from burn-out or mental health issues. Larger studies should assess both the outcome and the resources needed to screen for CB, with care integrated in the patient rehabilitation pathway.
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