Evidence map›Paper›PMID 40534270›Full record

ArticleAlzheimer's & dementia : the journal of the Alzheimer's Association2025

Support for Care Partners and Caregivers: 2023 Summit Session 5.

Kenneth Hepburn, Joseph Gaugler, Karen Roberto, Courtney Van Houtven, Rita Chula, Jason Resendez, Cassandra Thomas

Abstract read
In one paragraph

Article in Alzheimer's & dementia : the journal of the Alzheimer's Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Support for Care Partners and Caregivers: 2023 Summit Session 5.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Kenneth HepburnNell Hodgson Woodruff School of Nursing, Emory University, Atlanta, USA.
Joseph GauglerSchool of Public Health, University of Minnesota, Minneapolis, Minnesota, USA.
Karen RobertoDepartment of Human Development and Family Science, Virginia Tech, Blacksburg, Virginia, USA.
Courtney Van HoutvenDepartment of Population Health Sciences, Duke University School of Medicine, Durham, North Carolina, USA.
Rita ChulaAmerican Association of Retired Persons, Washington, District of Columbia, USA.
Jason ResendezNational Alliance for Caregiving, Washington, District of Columbia, USA.
Cassandra ThomasDepartment of Medicine, University of Wisconsin School of Medicine and Public Health at UW, Madison, Wisconsin, USA.

Funding

NIA of the US NIH.
6 · The paper itself

Abstract

introductionWe report on Session 5 of the 2023 NIA National Research Summit on care, services, and supports for persons living with dementia and their care partners/caregivers, "Support for Care Partners and Caregivers."

methodsThe session included scholarly presentations, comments by national caregiver advocates, and a conversation among panelists, discussants, and online attendees. Panelists later worked with the National Institute on Aging to identify gaps and opportunities to improve support for care partners and caregivers.

resultsPresentations emphasized the need to construe caregiving within an intersectional framework; include meaningful stakeholder engagement in research; and recognize the complex fabric of local, regional, and national policy affecting caregiving services and supports. Discussants emphasized the need to recognize caregiver needs and enable caregiver agency in research, policy, or practice. DISCUSSION: The conversation underscored the importance of including caregivers in efforts to improve care/caregiving and by taking as broad a construction of caregiving as possible. HIGHLIGHTS: Presentations and discussions centered on three key themes: The critical importance of integrally engaging family caregivers in all aspects of research, practice delivery and improvement, and policy development; Recognition that inclusivity should be a driving principle in identifying and understanding caregivers and the caregiving role; Appreciation for the intersection of the spheres of research, practice, and policy in affecting the well-being of family caregivers and those for whom they provide care.

Indexed as

CaregiversDementiaSocial SupportCongresses as TopicHumanscaregiver engagementdementia care and caregivingheterogeneity of caregivinginclusivityintersectionality

Identifiers

PMID40534270
PMCPMC12177188

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.