Evidence map›Paper›PMID 40533785›Full record

ArticleInternational journal for equity in health2025

Good mental health for people with intellectual disabilities: a participatory focus group study.

Sophie Komenda-Schned, Sarah Jasmin Landskron, Paula Moritz, Nicole Braunstein, Josef Hochmeister, Karin Riegler, Robert Saugspier, Louise Hillenkamp, Brigitte Lueger-Schuster, Luis Salvador-Carulla and 1 more

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Article in International journal for equity in health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Sophie Komenda-SchnedDepartment of Clinical and Health Psychology, Faculty of Psychology, University of Vienna, Liebiggasse 5, Vienna, A-1010, Austria.
Sarah Jasmin LandskronDepartment of Clinical and Health Psychology, Faculty of Psychology, University of Vienna, Liebiggasse 5, Vienna, A-1010, Austria.
Paula MoritzDepartment of Clinical and Health Psychology, Faculty of Psychology, University of Vienna, Liebiggasse 5, Vienna, A-1010, Austria.
Nicole BraunsteinBundesverband der Lebenshilfe Österreich, Vienna, Austria.
Josef HochmeisterBundesverband der Lebenshilfe Österreich, Vienna, Austria.
Karin RieglerBundesverband der Lebenshilfe Österreich, Vienna, Austria.
Robert SaugspierBundesverband der Lebenshilfe Österreich, Vienna, Austria.
Louise HillenkampDepartment of Clinical and Health Psychology, Faculty of Psychology, University of Vienna, Liebiggasse 5, Vienna, A-1010, Austria.
Brigitte Lueger-SchusterDepartment of Clinical and Health Psychology, Faculty of Psychology, University of Vienna, Liebiggasse 5, Vienna, A-1010, Austria.
Luis Salvador-CarullaHealth Research Institute, Faculty of Health, University of Canberra, ACT, Canberra, Australia.
Elisabeth Lucia ZeilingerDepartment of Clinical and Health Psychology, Faculty of Psychology, University of Vienna, Liebiggasse 5, Vienna, A-1010, Austria. elisabeth.zeilinger@univie.ac.at.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundMental health is a fundamental component of overall health. However, it remains unclear whether commonly accepted definitions of good mental health, like the WHO´s, are applicable to people with intellectual disabilities (ID). While there are studies with experts in the field of mental health and ID investigating this issue, the perspectives of people with ID themselves have yet to be adequately represented in this discourse.

aimWe aimed to identify key factors contributing to good mental health in people with ID, based on the perspectives of people with ID as experts on their own account.

methodsFive focus groups with people with ID (N = 20) from different living and working settings were conducted. The data was analyzed and synthesized using reflexive thematic analysis. Following a participatory research approach, people with ID acted as co-researchers throughout the research process, including data analysis.

resultsWe found six themes constituting good mental health in people with ID: (1) physical health, (2) working and living environment, (3) social contacts, (4) appropriate support, (5) competencies, and (6) psychosocial functioning. Psychosocial functioning included five sub-themes: (6a) emotions, (6b) self-determination and self-concept, (6c) doing something meaningful, (6d) responding well in social situations, and (6e) having energy and being able to relax.

conclusionsThe findings widely align with the factors outlined in the WHO definition of good mental health. While working productively as well as contributing to the community were not discussed, the relevance of social contacts and individualized support was emphasized. Additionally, this study underscores the added value of considering the unique perspectives of people with ID as experts on their own account and as co-researchers in participatory research settings.

Indexed as

Intellectual DisabilityMental HealthAdultCommunity-Based Participatory ResearchFemaleFocus GroupsHumansMaleMiddle AgedQualitative ResearchSocial SupportCo-researchersExperts by experienceFocus groupsGood mental healthIntellectual disabilitiesParticipatory researchSelf-advocatesThematic analysis

Identifiers

PMID40533785
PMCPMC12175403

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.