Evidence map›Paper›PMID 40531304›Full record

ArticleThe patient2025

Content Validity of the EQ-HWB in Caregivers of Children with Health Conditions.

Cate Bailey, Tessa Peasgood

Abstract readValidation Study
In one paragraph

Article in The patient, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Trial
  2. Article
  3. Qualitative testing of the EQ-HWB-9 with a 'blank' EQ-HWB VAS and EQ-5D-5L with skin bolt-ons in a rare genetic skin disease population.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Cate BaileyMelbourne Health Economics, Melbourne School of Population and Global Health, The University of Melbourne, 207 Bouverie St, Carlton, VIC, 3035, Australia. cate.bailey@unimelb.edu.au.ORCID 0000-0001-5030-430X
Tessa PeasgoodSchool of Medicine and Population Health, Sheffield Centre for Health and Related Research, University of Sheffield, Sheffield, UK.ORCID 0000-0001-8024-7801

Funding

EuroQol Research Foundation 1559
6 · The paper itself

Abstract

introductionThe EQ Health and Wellbeing instrument (EQ-HWB) is a new generic instrument designed for evaluation across health, social care, community, and caregiver populations. It has 25-item (EQ-HWB) and 9-item (EQ-HWB-S) versions. Validation across target populations is needed. As the instrument remains in an 'experimental' phase, modifications are being considered, including to item wording, item order, and positive versus negative framing of three items. We aimed to investigate the content validity of the EQ-HWB for caregivers of children with chronic health conditions and explore the potential modifications.

methodsIn total, 21 caregivers from an Australian children's hospital sample completed semi-structured interviews, answering the 25 EQ-HWB items while 'thinking aloud', followed by interviewer probing. Interviews and coding focused on the COSMIN components of relevance, comprehension (understanding), and comprehensiveness.

resultsMost EQ-HWB items were relevant and well understood by participants, especially the psychosocial items (e.g., loneliness, anxiety). Some participants were confused by the wording in the seeing and hearing items, which were also less relevant in this population. The item 'feeling unsafe' was only relevant for a few participants, but most considered it important. Responses to potential modifications to items were mixed. Many participants were keen to keep the three positively worded items. Some participants suggested that finishing with positive items may mitigate negative feelings on completion.

conclusionsEQ-HWB items have high relevance and are generally well understood by caregivers of children with health conditions. We recommend endorsing the modifications we tested for the EQ-HWB-S.

Indexed as

CaregiversQuality of LifeAdolescentAdultAustraliaChildChild, PreschoolChronic DiseaseFemaleHumansInterviews as TopicMaleMiddle AgedPsychometricsReproducibility of ResultsSurveys and Questionnaires

Identifiers

PMID40531304
PMCPMC12559129

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.