Evidence map›Paper›PMID 40525626›Full record

ArticleActa paediatrica (Oslo, Norway : 1992)2025

Assessing Adolescent Involvement in Type 1 Diabetes Treatment: A Scoping Review of Person-Reported Outcome Instruments.

Rikke Bjerre Rokkjær, Caroline Bruun Abild, Kurt Kristensen, Lene Juel Solskov, Annesofie Lunde Jensen

Abstract readScoping Review
In one paragraph

Article in Acta paediatrica (Oslo, Norway : 1992), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Rikke Bjerre RokkjærSteno Diabetes Center Aarhus, Aarhus University Hospital, Aarhus, Denmark.ORCID 0000-0003-3269-0117
Caroline Bruun AbildSteno Diabetes Center Aarhus, Aarhus University Hospital, Aarhus, Denmark.ORCID 0000-0003-4725-9880
Kurt KristensenSteno Diabetes Center Aarhus, Aarhus University Hospital, Aarhus, Denmark.
Lene Juel SolskovSteno Diabetes Center Aarhus, Aarhus University Hospital, Aarhus, Denmark.ORCID 0000-0003-1364-3737
Annesofie Lunde JensenSteno Diabetes Center Aarhus, Aarhus University Hospital, Aarhus, Denmark.ORCID 0000-0003-2025-6663

Funding

Steno Diabetes Center Aarhus
6 · The paper itself

Abstract

aimThe aim of this study was to identify and map the content, structure, and application of person-reported outcome instruments used to assess the experience of treatment involvement among adolescents with type 1 diabetes.

methodsStudies were identified in PubMed, Embase, CINAHL, PsycINFO, JSTOR, and MedNar. We included studies that used instruments that assess treatment involvement among adolescents (aged 11-18 years) with type 1 diabetes. All review steps involved two reviewers. Data extraction, charting, and analysis were guided by a template focusing on the content, structure, and application of instruments.

resultsThis scoping review identified 23 instruments used in 52 studies, measuring different kinds of treatment involvement among adolescents with type 1 diabetes, e.g., communication with clinicians, clinicians' commitment, and shared decision-making. Both instrument length and response formats varied across instruments. Some instruments were applicable in adolescents, whereas others were suitable for use in adults.

conclusionThis review details the use of several instruments assessing treatment involvement experiences among adolescents with type 1 diabetes. The findings of this review can guide clinicians and researchers on optimal instrument content, structure, and application to implement a person-centred care practice in paediatric diabetes care.

Indexed as

Diabetes Mellitus, Type 1Patient ParticipationPatient Reported Outcome MeasuresAdolescentChildHumansadolescentsendocrinologyperson‐reported outcomestreatment involvementtype 1 diabetes

Identifiers

PMID40525626
PMCPMC12420845

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.