ArticleJCPP advances2025
The process of co-design for a new anxiety intervention for autistic children.
Article in JCPP advances, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Evaluating co-design approaches with parents in paediatric healthcare: a systematic review.BMC health services research · 2025Pooled it
- Child and school staff perceptions and experiences of universal social and emotional learning curricula in context: A qualitative case study registered report examining 'Passport Skills for Life'.The British journal of educational psychology · 2026Trial
- Children's participation in the development and evaluation of parent-led interventions for children's mental health: a scoping review and consultation with children.European child & adolescent psychiatry · 2026Review
- The Joy and the Pain of Being Alone: Managing the Solitude-Loneliness (SOLO) Paradox in People High on the Autism Spectrum.Clinical child and family psychology review · 2026Review
- How Do Speech-Language Pathology Social Communication Interventions Incorporate the Strengths and Perspectives of Autistic Children and Their Families: A Scoping Review.Autism : the international journal of research and practice · 2026Article
- Parents' experiences in accessing services for their autistic children in the United Kingdom: A meta-synthesis.The British journal of clinical psychology · 2026Review
- Co-production with young people with developmental language disorder: Developing adapted materials for cognitive behavioral therapy.JCPP advances · 2026Article
- Adolescent eating behaviours: associations with autistic and ADHD traits in childhood and the mediating role of anxiety.Journal of child psychology and psychiatry, and allied disciplines · 2026Article
- Maximizing the Quality and Reporting Standards of Autism Intervention Science.Autism research : official journal of the International Society for Autism Research · 2025Article
- A systematic review of co-production approaches that involve family members, loved ones, or carers in the development of mental health or substance use resources/interventions.Research involvement and engagement · 2025Review
- The process of co-design for a new anxiety intervention for autistic children.JCPP advances · 2025Article
- Towards a more inclusive child and adolescent mental health research: Bridging gaps through neuro-affirmative, transdiagnostic, and participatory frameworks.JCPP advances · 2025Article
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
Background: Mental health difficulties are common for autistic people; however, almost no interventions have been co-designed with the autistic community. Co-design has the potential to add important insights from lived experience into intervention design, but there are currently limited examples of how rigorously to undertake this practice. This paper details a worked model of co-design and its process, focussed on adapting an evidenced parent-led intervention for non-autistic child anxiety (HYC), to meet the needs of young autistic children. The aim is to provide an example of co-design, integrating autistic, parental, academic, clinical, experience and expertise. Methods: Using prior literature and theory, including Experience-Based Co-Design, we developed an iterative and collaborative process between the research team and an expert reference group (ERG). The research team comprised autistic and non-autistic members. The ERG included parents (autistic and non-autistic) of autistic children with anxiety problems, autistic adults with experience of anxiety problems, and clinicians with experience supporting autistic children with anxiety problems. The ERG and research team reviewed information from qualitative research interviews with autistic children with anxiety problems and their parents along with information from clinical experience and the academic literature to reach consensus on the adapted intervention design. Results: The creation of a truly co-designed intervention that includes a neurodiversity-affirmative perspective, alongside CBT techniques. With anxiety problems experienced by autistic children being framed by combining the impacts of being neurodivergent in a neurotypical world, developmental science and well known cognitive behavioural models of child-anxiety. Conclusion: Co-design can help to integrate multiple perspectives and result in the creation of interventions that are potentially relevant and acceptable to autistic people, their family members, and clinicians.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.