ArticlePalliative care and social practice2025
Intersecting challenges: Cancer caregivers' experiences during COVID-19.
Article in Palliative care and social practice, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
Background: The COVID-19 pandemic introduced a landscape that contributed to many unknowns and unmet needs among cancer family caregivers and their care recipients. Aim: This secondary analysis qualitative study aimed to explore cancer family caregiver narratives for the societal and institutional contexts of caring for a person with advanced cancer during the early years of COVID-19. Design: Narrative inquiry was used in the parent study to co-create caregiver narratives. Methods: Narrative thematic analysis was used to identify themes of COVID-19 from five cancer caregiver narratives. Results: Thematic threads of COVID-19 were identified as short stories of tension woven throughout the caregiver narratives: advocacy for quality healthcare, the need to protect their person from the virus and medical/institutional disregard, financial strain, lack of social support, and the long goodbye. The findings further illustrate how COVID-19 and cancer intersect to influence a caregiver's healthcare experience and well-being. Conclusion: Family-centered care strategies and policy changes are needed to better meet the complex needs of cancer caregivers during a pandemic and beyond.
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