Evidence map›Paper›PMID 40518510›Full record

ArticleBMC proceedings2025

Advancing care priorities for health and quality of life among older adults in the autism and/or intellectual disabilities communities: proceedings of an international Think Tank.

David B Nicholas, Fakhri Shafai, Stephen M Edelson, Vanessa Bal, Hilary Nelson, Wenn Lawson, Mary Doherty, Hilde M Geurts, William F Sullivan, B Blair Braden and 17 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC proceedings, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

27 authors.

David B NicholasFaculty of Social Work, Central and Northern Alberta Region, University of Calgary, Edmonton, Canada. nicholas@ucalgary.ca.ORCID http://orcid.org/0000-0003-4480-322X
Fakhri ShafaiAIDE Canada, Richmond, Canada.ORCID http://orcid.org/0000-0002-0580-2411
Stephen M EdelsonAutism Research Institute, San Diego, USA.ORCID http://orcid.org/0000-0002-9856-5936
Vanessa BalGraduate School of Applied and Professional Psychology, Rutgers University, New Brunswick, USA.ORCID http://orcid.org/0000-0003-0750-823X
Hilary NelsonFaculty of Social Work, Central and Northern Alberta Region, University of Calgary, Edmonton, Canada.ORCID http://orcid.org/0009-0009-6091-2718
Wenn LawsonCurtin Autism Research Group, Curtin University, Western Australia, Perth, Australia.ORCID http://orcid.org/0000-0002-5079-852X
Mary DohertySchool of Medicine, University College Dublin, Dublin, Ireland.ORCID http://orcid.org/0000-0002-6995-3745
Hilde M GeurtsBrain & Cognition Department of Psychology, Faculty of Social and Behavioural Sciences, University of Amsterdam, Amsterdam, the Netherlands.ORCID http://orcid.org/0000-0002-4824-9660
William F SullivanKennedy Institute of Ethics, Department of Family Medicine, School of Medicine, Georgetown University, Washington, DC, USA.ORCID http://orcid.org/0000-0002-0520-0541
B Blair BradenCollege of Health Solutions, Arizona State University, Phoenix, USA.ORCID http://orcid.org/0000-0001-6842-9784
Gregory L WallaceDepartment of Speech, Language & Hearing Sciences, The George Washington University, Washington, DC, USA.ORCID http://orcid.org/0000-0003-0329-5054
Maxine ShareAutistic Consultant and Writer, Ontario, Canada.
Laura St JohnFaculty of Kinesiology, University of Calgary, Calgary, Canada.ORCID http://orcid.org/0000-0001-5066-2668
David G AmaralDepartment of Psychiatry and Behavioral Sciences, The MIND Institute, University of California-Davis, Davis, USA.ORCID http://orcid.org/0000-0003-1525-8744
Agnes H WhitakerDepartment of Psychiatry, Columbia University Irving Medical Center, New York, USA.
Lori Watters, British Columbia, Canada.
Terri Robson, Alberta, Canada.ORCID http://orcid.org/0000-0001-5646-7046
Joanne Gauthier, British Columbia, Canada.
Sylvère Moulanier, Alberta, Canada.
Linda PerryVela Canada, Langley, Canada.
Sandy Stemp, Reena, Thornhill, Canada.
Ellen WilkinsonDepartment of Psychology, Rutgers University, New Brunswick, USA.ORCID http://orcid.org/0000-0003-0755-9432
Nancy JokinenSchool of Social Work, University of Northern British Columbia, Prince George, Canada.
Margaret L BaumanSchool of Medicine, Boston University, Boston, USA.ORCID http://orcid.org/0000-0002-3229-0458
Robert HendrenDepartment of Psychiatry, University of California, San Francisco, San Francisco, USA.ORCID http://orcid.org/0000-0001-8470-4862
Evdokia AnagnostouFaculty of Medicine, Holland Bloorview Kids Rehabilitation Hospital, University of Toronto, Toronto, Canada.ORCID http://orcid.org/0000-0002-3455-9887
Julian N TrollorNational Centre of Excellence in Intellectual Disability Health, UNSW Medicine and Health, UNSW Sydney, Sydney, Australia.ORCID http://orcid.org/0000-0002-7685-2977

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

As the number of older autistic adults and adults with intellectual disabilities grows, expanding capacity to meet their needs is crucial. On November 23-25, 2023, a Think Tank on aging in autism and/or intellectual disabilities was convened, with national and international delegates within this field. The Think Tank consisted of presentations focusing on key issues as well as a series of panel presentations addressing first-person lived experience, family caregiving, service provision in the community, and physical and mental health-based care. Discussion reflected lived experiences and care needs in this population, with an ultimate aim of advancing healthcare and community support. Delegates, who represent perspectives as self-advocates, family caregivers, service providers, clinicians and researchers, ranked guidelines and areas of focus identified in the literature in terms of the most important priorities for the near-term development of capacity building resources.

Indexed as

AgingAutismGerontologyHealthIntellectual disabilitiesOlder adultsQuality of lifeSeniors

Identifiers

PMID40518510
PMCPMC12168249

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.