ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2025
Patients' experiences of responding to a Patient-Reported Outcome Measure for palliative care: a mixed method study.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
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2 citing papers in PubMed.
- Togetherness in Couples Living With Chronic Obstructive Pulmonary Disease: An Interpretive Interview Study.Journal of clinical nursing · 2026Article
- Differences in symptoms and problems experienced by patients with a life-threatening disease in specialized palliative care and basic palliative care-a nationwide cross-sectional study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
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9 authors.
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Abstract
backgroundWorldwide, there is growing interest in using Patient-Reported Outcome Measures (PROM) in palliative care. The Danish Health Data Authority has developed a new PROM called PRO-Pall, which was launched for nationwide use in patients with heart, lung, and kidney diseases, as well as cancer.
aimTo explore patients' experiences of responding to the PRO-Pall and using it in a consultation about palliative care needs in non-specialised palliative care settings.
methodsThis is a multicentre, mixed-methods study combining a quantitative approach using structured questionnaires (n = 270) and a qualitative analysis based on semi-structured interviews (n = 17). The quantitative survey included items assessing relevance, ease of use, and perceived benefits of PRO-Pall in preparing for consultations. Qualitative data collection involved interviews focusing on patients' experiences with PRO-Pall and its integration into clinical discussions. Quantitative data were analysed descriptively as numbers (n) and proportions (%), while qualitative data were analysed using thematically using to identify key themes.
resultsA total of 270 patients completed the survey, and 17 patients participated in interviews. The analysis revealed that the patients evaluated the PRO-Pall positively. The patients strongly agreed or agreed that the PRO-Pall was relevant (85%), easy to fill out (85%), helped to become aware of symptoms (61%) and a good way to prepare for the consultation (70%). The qualitative findings further supported these results, highlighting that patients found PRO-Pall relevant, appropriate, and convenient. Participants emphasized that PRO-Pall responses should be actively discussed during consultations with healthcare professionals to enhance its impact. Additionally, they noted that the timing of completing PRO-Pall was crucial, as patients' conditions fluctuate over time, potentially influencing their responses.
conclusionMost patients found the PRO-Pall relevant, appropriate, and easy to fill out. However, its effectiveness depends on healthcare professionals actively integrating patient responses into consultations. Otherwise, it would serve merely as documentation rather than an avenue for patients to discuss their concerns.
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