Evidence map›Paper›PMID 40511843›Full record

ReviewAugmentative and alternative communication (Baltimore, Md. : 1985)2025

Nothing about AAC users without AAC users: a call for meaningful inclusion in research, technology development, and professional training.

Grant Blasko, Janice Light, David McNaughton, Bob Williams, Jordyn Zimmerman

Abstract readReview
In one paragraph

Review in Augmentative and alternative communication (Baltimore, Md. : 1985), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. "JMIR medical education · 2026
    Article
  2. Review
  3. Review
  4. Review
  5. AAC and technology: what's communication equity got to do with it?Augmentative and alternative communication (Baltimore, Md. : 1985) · 2025
    Review
  6. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Grant BlaskoCommunicationFIRST, Washington, DC, USA.ORCID 0009-0004-1347-1933
Janice LightThe Pennsylvania State University, University Park, PA, USA.ORCID 0000-0003-4449-798X
David McNaughtonThe Pennsylvania State University, University Park, PA, USA.ORCID 0000-0001-5979-3859
Bob WilliamsCommunicationFIRST, Washington, DC, USA.
Jordyn ZimmermanCommunicationFIRST, Washington, DC, USA.ORCID 0009-0005-5616-9299

Funding

ACL HHS 90REGE0014
6 · The paper itself

Abstract

Historically, priorities for research, technology development, and professional training in the field of augmentative and alternative communication (AAC) have been identified largely by nondisabled professionals with limited, if any, involvement of people who need or use AAC. In this paper, we argue that people who need or use AAC must be leaders and co-creators in all activities that are about them or impact them. AAC users are the ones who have the best insights into their unmet needs; they also are the best positioned to identify priorities, appropriate methods, and potential solutions to the needs of the AAC community. A paradigm shift toward inclusive research, technology development, and professional training will bring challenges, including: the current lack of knowledge and experience with these methods in the AAC field; the potential for tokenism; and systemic barriers driven by ableism, racism, and other oppression. Ultimately, the field will need to build meaningful collaborations guided by mutual respect, trust, and the consideration of new ideas through open communication, a shared vision, and a deep commitment to the guiding principle, Nothing about us without us.

Indexed as

Communication Devices for People with DisabilitiesCommunication DisordersHumansResearchAACableisminclusive professional traininginclusive researchinclusive technology development

Identifiers

PMID40511843
PMCPMC13090835

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.