ArticleCanadian journal of diabetes2025
A Pilot Study of the Feasibility and Acceptability of a Patient Navigator in a Pediatric Type 1 Diabetes Clinic.
Article in Canadian journal of diabetes, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
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9 authors.
Funding
Abstract
objectiveOur aim in this study was to assess the feasibility and acceptability of a patient navigator (PN) in a pediatric type 1 diabetes (T1D) clinic.
methodsWe conducted a pilot prospective cohort intervention study from 2022 to 2024 of pediatric endocrinology patients with T1D of ≥1-year duration with glycated hemoglobin (A1C) ≥9.0%. Participants met with a PN over 6 months of clinic visits that consisted of pre- and postclinic visits to establish both clinical and nonclinical needs and follow-up goals. A subset of families completed semistructured interviews after the 6-month intervention to characterize their experiences during the study.
resultsOf 118 eligible patients, 27 youth of diverse backgrounds and their caregivers enrolled and 17 completed the study. Five or more distinct needs or goals were identified by ≥50% of families before as well as after clinic visits. Health-related social needs/concerns were identified at ∼20% of PN and clinic visits. After the 6-month study, 3 main themes emerged during the interviews: appreciation for the added value of a PN to support diabetes visits; recognition and gratitude for the efficiency of PN contacts; and a preference to personalize the PN intervention to family needs.
conclusionsIn this pilot study we demonstrated a high level of need among families of youth with T1D with suboptimal glycemic management; however, challenges with recruitment and retention demonstrated the importance of tailoring of the PN intervention to family priorities. Further study is required to optimize the impact of a PN in pediatric T1D clinics, with potential implementation at the time of diagnosis when there is need for greater support.
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