ArticlePsycho-oncology2025
"You Can Rest Knowing That We Know What You Want"-Longitudinal Advance Care Planning Discussions With Young Adults Receiving Hematopoietic Stem Cell Transplantation.
Article in Psycho-oncology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
2 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Current status of and factors influencing advance care planning participation among adolescents and young adults with cancer: a mixed-methods systematic review.BMC palliative care · 2026Pooled it
- Experiences with an Advance Care Planning Intervention for Children with Life-Limiting Conditions: A Qualitative Study of Families and Clinicians Using the IMplementing Pediatric Advance Care Planning Toolkit.Children (Basel, Switzerland) · 2026Article
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
objectiveYoung adults (YAs) undergoing hematopoietic stem cell transplantation (HSCT) often face significant transplant-related morbidity and mortality. Advance care planning (ACP) discussions can provide YAs with the opportunity to address treatment goals and care preferences with their family members and healthcare team. However, such discussions often do not occur until YAs are critically ill or at the end of life. This pilot study aimed to examine the usefulness of a series of planned ACP discussions during transplantation and their impact on dyadic (patient-caregiver) relationships.
methodsQualitative, semi-structured interviews were conducted with YAs, aged 18-39 years, and caregivers following completion of three ACP conversations, one of which used the Voicing My CHOiCES communication guide. Data were analyzed using a reflexive thematic approach.
resultsThirty-two interviews were conducted with 19 YAs and 13 caregivers of 21 YAs undergoing HSCT. Two main themes emerged: navigating uncertainty while facing potential mortality and reducing decisional regret. Having ACP conversations helped YAs communicate with their caregivers, often for the first time, about their preferences for care if they became seriously ill. This improved communication also often led to a sense of empowerment in knowing one another's preferences. Enhanced communication was reported to strengthen dyadic relationships.
conclusionAge-appropriate ACP conversations allowed YAs to express their preferences for care and provided an opportunity to address possible discrepancies with their caregivers. Such conversations can help to decrease stress, empower YAs and their caregivers, and potentially reduce decisional regret through a shared understanding of the YA's voice.
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