Evidence map›Paper›PMID 40495610›Full record

ArticleNeurourology and urodynamics2025

Urologic Chronic Pelvic Pain Syndrome: A Scoping Review of Syndrome-Specific Instruments.

Arya Catna, Victoria L Brown, Claire Gwak, Deeksha Kanagarag, Madeline Meyer, Srinitya Rapolu, Ratna Pakpahan, Lauren Yaeger, James W Griffith, Aimee S James and 3 more

Abstract readScoping Review
In one paragraph

Article in Neurourology and urodynamics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Arya CatnaDepartment of Surgery, Washington University School of Medicine, Division of Public Health Sciences, St. Louis, Missouri, USA.
Victoria L BrownDepartment of Surgery, Washington University School of Medicine, Division of Public Health Sciences, St. Louis, Missouri, USA.
Claire GwakDepartment of Surgery, Washington University School of Medicine, Division of Public Health Sciences, St. Louis, Missouri, USA.
Deeksha KanagaragDepartment of Surgery, Washington University School of Medicine, Division of Public Health Sciences, St. Louis, Missouri, USA.
Madeline MeyerDepartment of Surgery, Washington University School of Medicine, Division of Public Health Sciences, St. Louis, Missouri, USA.
Srinitya RapoluDepartment of Surgery, Washington University School of Medicine, Division of Public Health Sciences, St. Louis, Missouri, USA.
Ratna PakpahanDepartment of Surgery, Washington University School of Medicine, Division of Public Health Sciences, St. Louis, Missouri, USA.
Lauren YaegerWashington University School of Medicine, Bernard Becker Medical Library, St. Louis, Missouri, USA.
James W GriffithDepartments of Obstetrics and Gynecology, and Psychiatry and Behavioral Neuroscience, The University of Chicago Medicine, Chicago, Illinois, USA.
Aimee S JamesDepartment of Surgery, Washington University School of Medicine, Division of Public Health Sciences, St. Louis, Missouri, USA.
H Henry LaiDepartment of Surgery; and the Department of Anesthesiology, Washington University School of Medicine, Division of Urological Surgery, St. Louis, Missouri, USA.
Jerry L LowderDepartment of Surgery, Washington University School of Medicine, Division of Public Health Sciences, St. Louis, Missouri, USA.ORCID https://orcid.org/0000-0003-1065-4537
Siobhan SutcliffeDepartment of Surgery, Washington University School of Medicine, Division of Public Health Sciences, St. Louis, Missouri, USA.

Funding

Washington University MAPP Network Discovery SiteU01DK082315 · NIDDK · WASHINGTON UNIVERSITY · PI LAI, HING HUNG HENRY · 2008 to 2021
$9.0M
Clinical Outcomes Research Training in Female Lower Urinary Tract DisordersT32DK120497 · NIDDK · WASHINGTON UNIVERSITY · PI LOWDER, JERRY LANE, SUTCLIFFE, SIOBHAN · 2020 to 2024
$879k
Food-specific antibodies and urologic chronic pelvic pain syndrome.R01DK129226 · NIDDK · WASHINGTON UNIVERSITY · PI SUTCLIFFE, SIOBHAN · 2022 to 2024
$695k
NIDDK NIH HHS R01 DK129226NIDDK NIH HHS T32 DK120497NIDDK NIH HHS U01 DK082315This review was funded by research grants R01DK129226, U01DK082315, and T32DK120497.
6 · The paper itself

Abstract

objectiveTo facilitate research on interstitial cystitis/bladder pain syndrome (IC/BPS) and chronic prostatitis/chronic pelvic pain syndrome (CP/CPPS) symptom variability or flares, we reviewed the published literature to document existing data collection instruments (e.g., questionnaires and diaries), and to identify those relevant for flare research.

methodsSeven databases were searched systematically for articles describing the development of instruments: (1) specific for IC/BPS, CP/CPPS, or both; and (2) intended for use by investigators beyond the development team. In total, 1216 abstracts and 79 full-text articles were reviewed, and data were extracted in duplicate.

resultsWe identified 17 instruments, 11 for IC/BPS, 5 for CP/CPPS, and 1 for both. In total, 13 instruments (12 questionnaires and 1 electronic diary) assessed symptoms for diagnostic, symptom evaluation, and/or symptom monitoring purposes, and included items assessing the presence, location, intensity (mostly typical intensity), and/or amount of time experienced pelvic pain and/or urinary symptoms. No instruments included items related to symptom variability or flares.

conclusionIn addition to describing existing instruments for future urologic CPPS research, our review identified a lack of validated instruments for flares. Future studies should address this gap to facilitate rigorous research on this understudied topic.

Indexed as

Chronic PainCystitis, InterstitialPelvic PainProstatitisHumansMaleSurveys and Questionnaireschronic prostatitisdiaryinterstitial cystitisquestionnairereview

Identifiers

PMID40495610
PMCPMC12588399

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.