ArticleThe journals of gerontology. Series B, Psychological sciences and social sciences2025
Communicating palliative hope in late-stage dementia: thematic analysis of hope work in care plan meetings with nursing home residents' families.
Article in The journals of gerontology. Series B, Psychological sciences and social sciences, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
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Who cites it
2 citing papers in PubMed.
- Hope at the end of life: Can hope endure when life nears its end?Palliative & supportive care · 2025Article
- Design and development of 'Helder in Gesprek': A tool to support person-centred communication in memory clinics.Digital healthArticle
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Authors and funding
2 authors.
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Abstract
objectivesThe study analyzes how nursing home professionals communicate palliative hope in care plan meetings with family members of residents with late-stage dementia.
methodsEleven care plan meetings between nursing home professionals and residents' family members at Finnish nursing homes were video- or audio-recorded and analyzed with inductive thematic analysis. Data were collected in 2020-2021 using convenience sampling: All nursing homes within one region in Finland were contacted with the help of the local Memory Association, and all volunteers were accepted as study participants.
resultsWe identified three main themes of palliative hope in late-stage dementia: 1) Life is good and there is still time, 2) Agency and identity are not lost, and 3) Death will be good and professional support is available. DISCUSSION: As overarching goals of hope work, we identified acceptance and appreciation. Nursing home professionals have an important role in constructing and maintaining hope and thus supporting families. They can remind families that residents are not lost as people, they are in good care, and that there are still time and opportunities for a good life, meaningful moments, and connection, which families can appreciate despite the progressive illness. By highlighting the possibility of a peaceful death for the resident and willingness to support families in the end-of-life phase, nursing home professionals can help families accept the inevitable. Combined with good-quality palliative care, palliative hope work can support families' social relationships and foster meaningful experiences at the end-of-life stage.
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