Evidence map›Paper›PMID 40493111›Full record

ArticleIndian pediatrics2025

Development of a Disability Literacy Scale for Caregivers of Children with Chronic Neurodevelopmental Disabilities (DLS-C).

Urmila Dahake, Vedavati Bandyopadhyay, Jaya Prasad Tripathy, Meenakshi Girish, Pradeep Deshmukh, Sofia Azad, Gayatri Devi Chinnappa, Franzina Coutinho, Chitra Shah, Asis Kumar Ghosh and 6 more

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Article in Indian pediatrics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

16 authors.

Urmila DahakeDepartment of Pediatrics, All India Institute of Medical Sciences (AIIMS), Nagpur, Maharashtra, India.
Vedavati BandyopadhyayDepartment of Community Medicine, All India Institute of Medical Sciences (AIIMS), Nagpur, Maharashtra, India.
Jaya Prasad TripathyDepartment of Community Medicine, All India Institute of Medical Sciences (AIIMS), Nagpur, Maharashtra, India.
Meenakshi GirishDepartment of Pediatrics, All India Institute of Medical Sciences (AIIMS), Nagpur, Maharashtra, India. meenakshimgirish@gmail.com.ORCID 0000-0002-5165-0009
Pradeep DeshmukhDepartment of Community Medicine, All India Institute of Medical Sciences (AIIMS), Nagpur, Maharashtra, India.
Sofia AzadOccupational Therapy School & Center, Government Medical College, Nagpur, Maharashtra, India.
Gayatri Devi ChinnappaBangalore Medical College, Bangalore, India.
Franzina CoutinhoAmar Seva Sangam, Tenkasi, Tamil Nadu, India.
Chitra ShahSatya Special School, Puducherry, India.
Asis Kumar Ghosh, Kolkata, West Bengal, India.
M C HamsalekhaDEIC, Bangalore, Karnataka, India.
Devika JainChiranjeev Children's Hospital, Jabalpur, Madhya Pradesh, India.
Varidmala JainTrishala Foundation, Prayagraj, Uttar Pradesh, India.
Dinesh SarojProuds Child Development Centre, Nagpur, Maharashtra, India.
Shambhavi SethBright Beginnings CDC, New Delhi, India.
Navamani VenkatachalapathiAmar Seva Sangam, Tenkasi, Tamil Nadu, India.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo develop a disability literacy scale for caregivers of children with chronic neurodevelopmental disabilities.

methodsA multicentric cross-sectional, facility-based study was conducted across ten sites in India in three phases. In the first phase, item generation and identification of core items for the scale were carried out through free listing and Smith's Salience Score. The second phase involved establishing content validity through Delphi rounds with experts, followed by identification of factors and reliability analysis in phase three by recruiting caregivers (n = 323) from each center through simple random sampling.

resultsOf 83 items generated through free listing, 24 items were included in the final scale with an excellent reliability of 0.79. Exploratory factor analysis identified five factors explaining 31% variance: knowledge regarding treatment and support services (7 items), knowledge regarding activity and participation decisions (4 items), collaborative goal setting ability (4 items), lifespan concerns (6 items), and skills for self-help (3 items).

conclusionsA reliable, disability-specific literacy measurement tool has been developed for caregivers of children with chronic neurodevelopmental disabilities. The scale is available in five Indian languages and can be self-administered by caregivers.

Indexed as

CaregiversChildren with DisabilitiesHealth LiteracyNeurodevelopmental DisordersAdolescentAdultChildChild, PreschoolChronic DiseaseCross-Sectional StudiesFemaleHumansIndiaMaleReproducibility of ResultsSurveys and QuestionnairesCaregiver burdenDevelopmental disabilitiesHealth literacy

Identifiers

PMID40493111

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