Evidence map›Paper›PMID 40485365›Full record

ArticleJournal of applied research in intellectual disabilities : JARID2025

Using Grief for Good: The Transformative Effect of Participatory Action Research for Parents With Intellectual Disability Who Have Experienced Child Removal.

Margaret Spencer, Susan Collings, Hannah Wilkinson

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of applied research in intellectual disabilities : JARID, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Margaret SpencerSydney School of Education and Social Work, University of Sydney, New South Wales, Australia.
Susan CollingsTransforming Early Education and Child Health Research Centre, Western Sydney University, New South Wales, Australia.
Hannah WilkinsonSydney School of Education and Social Work, University of Sydney, New South Wales, Australia.

Funding

The Australian Government Department of Social Services' Information, Linkage and Capacity Building (ILC) - Individual Capacity Building Grant Scheme.The National Disability Insurance Agency
6 · The paper itself

Abstract

backgroundParents with intellectual disability experience high rates of child removal, which affects their well-being.

methodParticipatory action research (PAR) was undertaken with eight parents with intellectual disability who had children removed from their care. Parents were interviewed before and after the PAR. Three themes emerged: a safe space, revisiting the past and grief for good.

resultParents reported that participating in the PAR was cathartic, allowing them to transform feelings of grief and injustice into actions that benefitted other parents.

conclusionPAR can be transformative, enabling parents with intellectual disabilities to advocate for and contribute to improved practices.

Indexed as

GriefIntellectual DisabilityParentsAdultChildCommunity-Based Participatory ResearchFemaleHumansMaleMiddle AgedQualitative Researchchild protectiongrief and lossparents with intellectual disabilityparticipatory action research

Identifiers

PMID40485365
PMCPMC12146799

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.