ArticlePM & R : the journal of injury, function, and rehabilitation2025
"I'd rather be in pain than be patronized." A qualitative study of health care experiences of persons with disabilities.
Article in PM & R : the journal of injury, function, and rehabilitation, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- "I'd rather be in pain than be patronized." A qualitative study of health care experiences of persons with disabilities.PM & R : the journal of injury, function, and rehabilitation · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
backgroundPrior research shows that persons with disabilities (PWD) frequently receive inadequate health care and that physicians are uncomfortable caring for patients with disabilities, both of which may be attributed to the lack of disability education in medical training. Little is known about what adequate training would include or what PWD wish physicians knew about their experiences.
objectiveTo inform the design of a preclinical elective course for medical students by learning from PWD what they believe is most important for physicians to know when providing their care.
designSemistructured interviews.
settingPWD in the greater Pittsburgh region.
participantsWe recruited individuals aged 18 years and older with disabilities, as well as parents of children with disabilities. Purposive, expert sampling and snowball recruitment took place through medical clinics familiar to the study, social media, and naturally occurring social networks. Of the 94 individuals who expressed interest, 15 were selected to participate.
methodsFifteen one-to-one interviews were conducted using a semistructured interview guide, and key themes were identified using thematic analysis.
resultsStudy participants described many things they wanted physicians to understand prior to providing their care. They explained the preparation and collaboration necessary to adequately accommodate disability-related needs and the significant impact that failing to do so has on their health and well-being. They also offered examples of good care and practical suggestions for improving care.
conclusionParticipants highlighted critical gaps in the health care system, underscoring the need for medical education that includes providing care to PWD and a better understanding of disability-related needs. Although the purpose of the study was to inform a preclinical elective course for medical students, this alone is insufficient to train a competent workforce. Further curriculum work is needed to ensure students receive a broad education on disabilities, including both clinical and preclinical instruction.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.