Evidence map›Paper›PMID 40476006›Full record

ArticleCochrane evidence synthesis and methods2023

Stakeholder involvement in a Cochrane review of physical rehabilitation after stroke: Description and reflections.

Julie Brown, Gill Baer, Sheila Cameron, Karl Jackson, Carrol Lamouline, Richard Morley, Diane Ormsby, Anneliese Synnot, Alex Todhunter-Brown

Abstract read
In one paragraph

Article in Cochrane evidence synthesis and methods, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Review
  2. Article
  3. Review
  4. Challenges and Facilitators to Patient and Public Involvement In Stroke Research: Protocol for a Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  5. Article
  6. Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Julie BrownPhysiotherapist Glasgow UK.ORCID 0000-0002-7494-1650
Gill BaerDivision of Dietetics, Nutrition and Biological Sciences, Physiotherapy, Podiatry and Radiography Queen Margaret University Edinburgh UK.
Sheila CameronChair, NMAHP Research Unit Research Partnership Group Glasgow Caledonian University Glasgow UK.
Karl JacksonConsultant Stroke Therapist, Bangor Hospital Betsi Cadwaladr University Health Board Bangor UK.
Carrol LamoulineLay Contributor London UK.
Richard MorleyConsumer Engagement Officer Cochrane UK.
Diane OrmsbyBalance Neuro Physiotherapy Fareham and Gosport UK.
Anneliese SynnotSchool of Public Health and Preventive Medicine Monash University Melbourne Australia.
Alex Todhunter-BrownNursing, Midwifery and Allied Health Professions (NMAHP) Research Unit Glasgow Caledonian University Glasgow UK.ORCID 0000-0003-4941-7985

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: It is good practice to involve stakeholders in systematic reviews, but it is not clear how best to involve them. Aim: To describe and reflect on the stakeholder involvement within an update of a Cochrane review of physical rehabilitation after stroke. Methods: A stakeholder group, comprising 15 stroke survivors, carers, and physiotherapists from across the United Kingdom, were recruited and contributed throughout the process of the review. A framework was used to describe when and how stakeholders were involved. Stakeholders provided feedback on their involvement after meetings. An amended version of a validated patient engagement tool was used to collect reflections on the stakeholder involvement process. Results: Five stakeholder meetings were held throughout the review process, supplemented by additional communication. Several changes were made to the review structure, analyses, and wording as a direct result of the stakeholder involvement. Stakeholders and researchers agreed that stakeholders' contributions were taken seriously and influenced the review. Stakeholders felt that they were given the chance to share their views and that information was shared well before, during, and after each meeting to help them to contribute knowledgeably in the process. Stakeholder reflections highlighted a number of key lessons relating to stakeholder involvement, including process of reflection and feedback, use of remote/virtual meetings, need for adequate time and funding, tensions experienced by clinicians, and recruitment considerations. Conclusions: We describe and reflect on stakeholder involvement in a systematic review and explores practical ways to support meaningful engagement during systematic review production. Our experience supports the view that coproducing reviews with stakeholders can make systematic reviews more relevant and meaningful. Our approach and experiences can be used to inform future review coproduction, supporting development of useful reviews that will improve clinical practice.

Indexed as

coproductionpatient and public involvementreflectionstakeholder involvementstrokesystematic review

Identifiers

PMID40476006
PMCPMC11795892

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.