Evidence map›Paper›PMID 40471460›Full record

ArticleJournal of patient-reported outcomes2025

Participation and quality of life of Nepalese children with visual impairment in comparison with normally sighted peers: a cross sectional comparative study.

Srijana Adhikari, Ellen Bernadette Maria Elsman, Ruth Marie Antoinette van Nispen, Fleur Van Rens, Manish Poudel, Gerardus Hermanus Maria Bartholomeus van Rens

Abstract readComparative Study
In one paragraph

Article in Journal of patient-reported outcomes, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

6 authors.

Srijana AdhikariTilganga Institute of Ophthalmology, Gaushala Kathmandu, Nepal. srij_a@yahoo.com.ORCID http://orcid.org/0000-0003-4894-9533
Ellen Bernadette Maria ElsmanDepartment of Ophthalmology, VU University Medical Centre and the Amsterdam Public Health Research Institute, PO Box 7057, Amsterdam, 1007 MB, The Netherlands.
Ruth Marie Antoinette van NispenDepartment of Ophthalmology, VU University Medical Centre and the Amsterdam Public Health Research Institute, PO Box 7057, Amsterdam, 1007 MB, The Netherlands.
Fleur Van RensSchool of Allied Health (Exercise Science), Murdoch University, Murdoch, Australia.
Manish PoudelTilganga Institute of Ophthalmology, Gaushala Kathmandu, Nepal.
Gerardus Hermanus Maria Bartholomeus van RensDepartment of Ophthalmology, VU University Medical Centre and the Amsterdam Public Health Research Institute, PO Box 7057, Amsterdam, 1007 MB, The Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPoor vision compromises quality of life and participation in different daily life activities of children such as, sports, leisure time, interactive play and social interaction. The purpose of this cross - sectional study is to investigate participation and quality of life of children with visual impairment (VI) and blindness compared with normally sighted peers. METHODOLOGY: Children aged 7-17 years with blindness (n = 100), moderate to severe VI (n = 100) and normal sight (n = 100) completed Nepalese versions of the Participation and activity inventory children and youth (PAI-CY 7-12 and 13-17), L. V. Prasad functional vision questionnaires (LVP-FVQ II) and Pediatric Eye Questionnaires (PedEyeQ 5-11 and 12-17). The measurement properties of PAI -CY was studied. All (sub) scores were compared between three groups. Associations between the severity of VI and outcomes were assessed with age and sex adjusted linear regression analyses.

resultsChildren with blindness scored worse than children with VI, who scored worse than normally sighted children on the PAI-CY 7-12, the physical functioning subscale of the PAI-CY 13-17 and the LVP-FVQ II(p = < 0.001).However, for the psychosocial functioning subscale of PAI-CY 13-17, children with blindness scored better than children with VI(p = < 0.01). On the PedEyeQ, young children (5-11) with blindness on all subscales, and older children (12-17 years) with blindness on the functional vision subscale scored worse than children with VI(p = < 0.01).Regression models showed that both moderate/severe VI and blindness were significantly associated with worse PAI-CY, LVP-FVQ II, PedEyeQ 5-11 and PedEyeQ 12-17 functional vision subscale scores(p = < 0.01).

conclusionYounger children with blindness showed worse participation and quality of life compared to children with VI, whereas results for older children showed a mixed pattern with children with blindness showing better participation in psychosocial domain. Appropriate low vision rehabilitation interventions are needed for children with VI and blindness to increase their participation and quality of life to the level of their normally sighted peers as far as possible. Future studies could include children who do not attend school and may have worse participation and quality of life than children in our study.

Indexed as

BlindnessQuality of LifeSocial ParticipationVision DisordersActivities of Daily LivingAdolescentChildCross-Sectional StudiesFemaleHumansMaleNepalSeverity of Illness IndexSurveys and QuestionnairesBlindnessChildrenParticipation and activityPROMsQuality of lifeVisual impairment

Identifiers

PMID40471460
PMCPMC12141697

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.