Evidence map›Paper›PMID 40470703›Full record

ArticleAutism research : official journal of the International Society for Autism Research2025

Autism Spectrum Disorders Discourse on Social Media Platforms: A Topic Modeling Study of Reddit Posts.

Seraphina Fong, Alessandro Carollo, Giacomo Vivanti, Daniel S Messinger, Dagmara Dimitriou, Gianluca Esposito

Abstract read
In one paragraph

Article in Autism research : official journal of the International Society for Autism Research, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Autism Spectrum Disorders Discourse on Social Media Platforms: A Topic Modeling Study of Reddit Posts.Autism research : official journal of the International Society for Autism Research · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Seraphina FongDepartment of Psychology and Cognitive Science, University of Trento, Rovereto, Italy.ORCID 0000-0002-8256-746X
Alessandro CarolloDepartment of Psychology and Cognitive Science, University of Trento, Rovereto, Italy.ORCID 0000-0002-2737-0218
Giacomo VivantiA.J. Drexel Autism Institute, Drexel University, Philadelphia, Pennsylvania, USA.ORCID 0000-0002-4034-9157
Daniel S MessingerDepartment of Psychology, Pediatrics, Electrical & Computer Engineering, and Music Engineering, University of Miami, Coral Gables, Florida, USA.ORCID 0000-0002-9551-675X
Dagmara DimitriouSleep Education and Research Laboratory, Psychology and Human Development, UCL Institute of Education, London, UK.ORCID 0000-0002-6856-0595
Gianluca EspositoDepartment of Psychology and Cognitive Science, University of Trento, Rovereto, Italy.ORCID 0000-0002-9442-0254

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Social media platforms play a crucial role in shaping public perceptions of neurodevelopmental conditions, such as autism spectrum disorders, by providing spaces for community interaction and content sharing. These platforms hold the potential to foster connections and support among autistic individuals while offering valuable insights into their personal experiences and diverse perspectives. However, knowledge is limited on autism-related content shared within Reddit, one of the most prominent social media outlets. In this study, we aimed to examine discussions and narratives shared on Reddit about autism, with the dual objectives of identifying the main topics of discussion and exploring the lived experiences of autistic individuals. To achieve this, we utilized state-of-the-art natural language processing techniques to perform a topic modeling analysis on 740,042 autism-related posts collected from Reddit. Converging themes emerged when comparing the largest and most general subreddit in the dataset (r/autism) with 15 additional autism-related subreddits. The most prominent topics of discussion included challenges in social relationships, behaviors such as stimming, and sensory sensitivities. Additional themes highlighted specific emotional experiences and practical concerns, such as managing a diagnosis, navigating intervention options, and coping with daily life. These findings were organized and discussed in relation to social communication differences and restricted, repetitive behaviors, which are frequently highlighted in discussions about autism. At the same time, we acknowledge the perspective of autistic communities, which view these traits as differences rather than deficits, with many challenges arising from societal expectations and the pressure to mask neurodivergent traits. Together, the results provide a comprehensive overview of the most common topics discussed within autism-related social media content and offer valuable insights into the lived experiences and motivations for social media engagement among autistic individuals.

Indexed as

Autism Spectrum DisorderSocial MediaHumansSocial Interactionautismautism spectrum disordersBERTopicnatural language processingneurodevelopmental conditionssocial mediasocial networking sitestopic modeling

Identifiers

PMID40470703
PMCPMC12384743

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.