Evidence map›Paper›PMID 40469004›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2025

Perceptions and Significance of Long Covid Diagnoses From the Perspectives of Children and Young People With Long Covid, Their Parents and Professionals.

Alice Faux-Nightingale, Benjamin Saunders, Claire Burton, Carolyn A Chew-Graham, Glenys Somayajula, Helen Twohig, Victoria Welsh

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In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 synthesis or guideline pooled it.

  1. Patient and Professional Perspectives on Long COVID: A Systematic Literature Review and Meta-Synthesis.International journal of environmental research and public health · 2025
    Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Alice Faux-NightingaleSchool of Medicine, Keele University, Keele, UK.ORCID 0000-0002-4865-181X
Benjamin SaundersSchool of Medicine, Keele University, Keele, UK.ORCID 0000-0002-0856-1596
Claire BurtonSchool of Medicine, Keele University, Keele, UK.
Carolyn A Chew-GrahamSchool of Medicine, Keele University, Keele, UK.
Glenys SomayajulaSchool of Medicine, Keele University, Keele, UK.
Helen TwohigSchool of Medicine, Keele University, Keele, UK.
Victoria WelshSchool of Medicine, Keele University, Keele, UK.

Funding

This study presents independent research funded by the NIHR School for Primary Care Research (Grant Reference Number 517) and the NIHR West Midlands Clinical Research Network. C.B. is funded by a National Institute for Health Research (NIHR) Clinical Lectureship. V.W. is part-funded by WM ARC.
6 · The paper itself

Abstract

introductionLong Covid, the patient-preferred term, describes symptoms persisting after an acute Covid-19 infection. Understanding the importance and meaning of a Long Covid diagnosis to children and young people (CYP), their families and professionals associated with their care can give insight into the way that these diagnoses are used across these groups to support care and needs of the patient. This study explores the meaning and importance of a Long Covid diagnosis from the perspectives of CYP with Long Covid, their parents and relevant professionals.

methodsCYP and their parents or carers were invited to interview following participation in an initial cohort study. Professionals with experience working with CYP with Long Covid were invited to participate in a focus group. Interviews were carried out with four CYP with Long Covid (all female, aged 10-17 years); parents were present at three interviews. Seven professionals with experience in the care of CYP or Long Covid participated in one of two focus groups. Data were analysed thematically using constant comparison techniques.

resultsThe three main themes presented are as follows: the importance of receiving a diagnosis, diagnosis facilitates access to support and perspectives of discordance between family and professionals. The diagnosis of Long Covid has different meanings and significance for parents and professionals. Families described the diagnosis as a legitimisation of their experiences and a way to access support, but professionals questioned some of the ways families use the diagnosis, focusing instead on appropriate treatment according to CYP's needs.

conclusionFor families, Long Covid diagnoses are important for validating and legitimising symptoms, removing uncertainty, and supporting access and participation, particularly in school. While these uses differ from those of professionals, understanding the importance of a Long Covid diagnosis to families may ensure effective communication, negotiation of an acceptable management plan, and ongoing support for this group. PATIENT OR PUBLIC CONTRIBUTION: Patients and the public contributed throughout this project and had input on the study design, topic guides, and dissemination of findings.

Indexed as

COVID-19Health PersonnelParentsAdolescentChildFemaleFocus GroupsHumansInterviews as TopicMaleQualitative ResearchSARS-CoV-2adolescentchildCovid‐19diagnosisgeneral practiceLong Covidqualitative methods

Identifiers

PMID40469004
PMCPMC12138285

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.