Evidence map›Paper›PMID 40467965›Full record

ArticleJournal of cancer survivorship : research and practice2026

Effects of the right to be forgotten for childhood or breast cancer survivors: results of a quasi-experimental study in France.

Nicolas Bougas, Tienhan Sandrine Dabakuyo Yonli, Emerline Assogba, Nadia Haddy, Florent De Vathaire, Asmaa Janah, Morgane Michel, Aurelie Bourmaud, Hugo Jeanningros, Moreno Ursino and 2 more

Abstract read
In one paragraph

Article in Journal of cancer survivorship : research and practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Review
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Nicolas BougasUniversité Paris Cité, Inserm, ECEVE,UMR 1123, Paris, France.
Tienhan Sandrine Dabakuyo YonliBreast and Gynaecologic Cancer Registry of Côte d'Or, INSERM U1231, Georges-François Leclerc Comprehensive Cancer Centre-UNICANCER, Dijon, France.
Emerline AssogbaBreast and Gynaecologic Cancer Registry of Côte d'Or, INSERM U1231, Georges-François Leclerc Comprehensive Cancer Centre-UNICANCER, Dijon, France.
Nadia HaddyRadiation Epidemiology Team, CESP, Inserm U1018, University Paris-Saclay, Villejuif, France.
Florent De VathaireRadiation Epidemiology Team, CESP, Inserm U1018, University Paris-Saclay, Villejuif, France.
Asmaa JanahUniversité Paris Cité, Inserm, ECEVE,UMR 1123, Paris, France.
Morgane MichelUniversité Paris Cité, Inserm, ECEVE,UMR 1123, Paris, France.
Aurelie BourmaudAP-HP, INSERM, Clinical Epidemiology Unit CIC 1426 Robert Debré University Hospital, Paris, France.
Hugo JeanningrosLIST3 N, Technologies Et Pratiques, Université de Technologie de Troyes, Troyes, France.
Moreno UrsinoInserm, Université Paris Cité, Inria, HeKA, Paris, France.
Renaud DebaillySorbonne University in Abu Dhabi, SAFIR and GEMASS, Groupe d'Etude des Méthodes de l'Analyse Sociologique de la Sorbonne, UMR 8598, Paris, France.
Agnes DumasINSERM, Aix Marseille Univ, IRD, ISSPAM, SESSTIM, (Economic and Social Sciences of Health and Medical Information Processing), CALIPSO team, Institut Paoli-Calmettes, Marseille, France. agnes.dumas@inserm.fr.ORCID http://orcid.org/0000-0001-7948-6952

Funding

Institut National Du Cancer INCA_15900
6 · The paper itself

Abstract

purposeCancer survivors have reported difficulties in accessing loan-related insurance, in particular for a home loan. In France, a law called "the Right To Be Forgotten" (RTBF) was adopted in 2017 to counter this "financial toxicity" of cancer. Since then, eight other European countries have adopted or implemented legislation inspired by the French RTBF. Several patients' organizations in Europe have called for an extension of the RTBF across all European countries. The aim of this study was to evaluate the effects of the RTBF on the reduction of survivors experiencing difficulties in obtaining loan-related insurance after cancer in France.

methodA quasi-experimental study was conducted using different sources of recruitment to enroll breast and childhood cancer survivors (cases) and individuals without a history of cancer (controls). Difficulties in accessing loan-related insurance reported by cancer survivors and controls before and after the adoption of the law (2010-2022) were collected using an online questionnaire and compared between groups. Groups were matched using propensity scores on age, sex, the amount of insured capital, and health-related variables. The effect of the RTBF's adoption was estimated using a conditional logistic regression.

resultsOut of 552 matched respondents (1:3 case-control ratio), difficulties in accessing loan-related insurance were reported by 65% of cases vs. 16% of controls before the RTBF and by 35% of cases vs. 15% of controls after the RTBF (P < .0001). The likelihood of experiencing difficulties in obtaining a loan was significantly decreased (β =  - 0.29; OR = 0.74; P = 0.01) after the RTBF. In subgroup analyses, the results remained significant solely for childhood cancer survivors.

conclusionsDespite a significant decrease in the proportion of cancer survivors experiencing difficulties after the adoption of the RTBF, there are possible difficulties in the law's implementation, dissemination, and usage, in particular for adult cancer survivors. IMPLICATIONS FOR CANCER SURVIVORS: The RTBF may alleviate cancer survivors' difficulties in accessing loan-related insurance with a possible impact in decreasing the financial toxicity of cancer, both from a subjective and an objective point of view.

Indexed as

Breast NeoplasmsCancer SurvivorsAdolescentAdultCase-Control StudiesChildFemaleFranceHumansMaleMiddle AgedCost of illnessFinancial burdenFinancial toxicityQuality of lifeSocial discriminationSocial inequalities

Identifiers

PMID40467965
PMCPMC13676674

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.