Evidence map›Paper›PMID 40465069›Full record

ArticleJournal of autism and developmental disorders2025

Raising Autistic Children in Mainland China: A Qualitative Study of Parental Experiences and Challenges.

Yongshen Feng, Tsz Ying Christine Ng, Dali Lu, Lily Man Lee Chan, Junyan Li, Pui Hing Chau, Jojo Yan Yan Kwok

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Article in Journal of autism and developmental disorders, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Yongshen FengSchool of Nursing, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong SAR, China.
Tsz Ying Christine NgSchool of Nursing, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong SAR, China.
Dali LuDepartment of Child Mental Health, Shenzhen Longhua Maternity and Child Healthcare Hospital, Shenzhen City, Guangdong Province, China.
Lily Man Lee ChanSchool of Nursing, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong SAR, China.
Junyan LiSchool of Nursing, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong SAR, China.
Pui Hing ChauSchool of Nursing, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong SAR, China.
Jojo Yan Yan KwokSchool of Nursing, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong SAR, China. jojo.yykwok@gmail.com.ORCID http://orcid.org/0000-0001-7444-6935

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeParenting children with autism presents unique challenges globally, particularly in China, where cultural factors and an underdeveloped service system can add complexity. This study aimed to explore the parenting experience and challenges of parents raising an autistic child in mainland China.

methodsA qualitative descriptive design using individual semi-structured interviews. Using purposive sampling, participants were recruited in mainland China from April to July 2023. Interview data were transcribed verbatim and analyzed using thematic analysis.

resultsTwenty-five Chinese parents (nineteen mothers and six fathers) of autistic children were interviewed. Four themes emerged: (1) diminished quality of life due to the caregiving role; (2) fears and worries regarding children's development; (3) experiences of isolation and loneliness in the caregiving journey; and (4) parental behaviors and their impact on child development.

conclusionThe findings suggest that effective support for individuals with autism extends beyond individual-level interventions, necessitating the integration of family care and robust community support systems. Cultivating autism-friendly communities - where understanding, acceptance, and resources are readily available - is crucial for a more inclusive and supportive environment that addresses cultural stigma, empowers caregivers, and ensures access to appropriate services.

Indexed as

Autism Spectrum DisorderChallengesParenting ExperiencesQualitative Study

Identifiers

PMID40465069

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.