Evidence map›Paper›PMID 40463913›Full record

ArticleTH open : companion journal to thrombosis and haemostasis2025

First Experiences of Patients and Healthcare Professionals with Routine Use of Patient-Reported Outcome Measures for Venous Thromboembolism.

Cindy M M de Jong, Sophie N M Ter Haar, Willem Jan W Bos, Paul L den Exter, Menno V Huisman, Marlon H C Kosterink, Thijs E van Mens, Frederikus A Klok

Abstract read
In one paragraph

Article in TH open : companion journal to thrombosis and haemostasis, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Capturing the late complications of venous thromboembolism.Research and practice in thrombosis and haemostasis · 2026
    Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Cindy M M de JongDepartment of Medicine, Thrombosis and Hemostasis, Leiden University Medical Center, Leiden, the Netherlands.
Sophie N M Ter HaarDepartment of Medicine, Thrombosis and Hemostasis, Leiden University Medical Center, Leiden, the Netherlands.
Willem Jan W BosDepartment of Medicine, Nephrology, Leiden University Medical Center, Leiden, the Netherlands.
Paul L den ExterDepartment of Medicine, Thrombosis and Hemostasis, Leiden University Medical Center, Leiden, the Netherlands.
Menno V HuismanDepartment of Medicine, Thrombosis and Hemostasis, Leiden University Medical Center, Leiden, the Netherlands.
Marlon H C KosterinkDepartment of Information Technology and Digital Innovation, Leiden University Medical Center, Leiden, the Netherlands.
Thijs E van MensDepartment of Medicine, Thrombosis and Hemostasis, Leiden University Medical Center, Leiden, the Netherlands.
Frederikus A KlokDepartment of Medicine, Thrombosis and Hemostasis, Leiden University Medical Center, Leiden, the Netherlands.ORCID 0000-0001-9961-0754

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Venous thromboembolism (VTE) can considerably limit patients' functioning and quality of life. Using patient-reported outcome measures (PROMs), the full impact of VTE on individual patients can be captured. Methods: To evaluate the experiences of patients and healthcare professionals with the routine use of PROMs for VTE patients visiting the outpatient clinic, a mixed-methods study was performed at Leiden University Medical Center, the Netherlands. VTE PROMs were incorporated into routine care since March 2023, through a digital application sending patients invitations to complete PROMs. Quantitative and qualitative data were obtained from semi-structured interviews with patients and involved healthcare professionals. The NoMAD (normalization measure development) questionnaire was used to assess the implementation process from the professionals' perspective. Patients aged ≥18 years who experienced VTE and completed PROMs at two follow-up time points during ≥3 months follow-up and VTE patients who did not complete PROMs at both time points were asked to participate. Results: Eight patients (five completed PROMs; three did not) and four professionals were interviewed. Both patients and professionals experienced the use of PROMs as neutral to predominantly positive (lower limit 3 on a scale of 1-5). All professionals valued the effects of PROMs on their work. Most patients felt the questionnaires contained too many questions. Suggestions to improve the completion rate, accessibility, PROMs content, and the digital tool were shared. Conclusion: PROMs were believed to provide additional value during preparation for the appointment and during the consultation. The first experiences of patients and professionals, tending toward positive, can be used to improve PROMs application and support implementation in routine thrombosis care.

Indexed as

implementation sciencepatient-centered carepatient outcome assessmentpatient-reported outcome measuresvenous thromboembolism

Identifiers

PMID40463913
PMCPMC12132087

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.