Evidence map›Paper›PMID 40462298›Full record

Observational studySpecial care in dentistry : official publication of the American Association of Hospital Dentists, the Academy of Dentistry for the Handicapped, and the American Society for Geriatric Dentistry

Behavioral Correlates of Caregiver-Reported Oral Health of Individuals With Joubert Syndrome: A Cross-Sectional Observational Study.

Sai Win Kyaw Htet Aung, Joshua Orack, Dan Doherty, Travis Nelson, Jennifer C Dempsey, Sophie R Li, Donald L Chi

Abstract readObservational Study
PubMed Full text at PMC Publisher
In one paragraph

Observational study in Special care in dentistry : official publication of the American Association of Hospital Dentists, the Academy of Dentistry for the Handicapped, and the American Society for Geriatric Dentistry. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Sai Win Kyaw Htet AungDepartment of Oral Health Sciences, University of Washington School of Dentistry, Seattle, Washington, USA.
Joshua OrackDepartment of Oral Health Sciences, University of Washington School of Dentistry, Seattle, Washington, USA.
Dan DohertyDivisions of Genetics and Developmental Medicine, Department of Pediatrics, University of Washington School of Medicine, Seattle, Washington, USA.
Travis NelsonDepartment of Pediatric Dentistry, University of Washington, Seattle, Washington, USA.
Jennifer C DempseyDepartment of Pediatrics, Division of Genetic Medicine, University of Washington, Seattle, Washington, USA.
Sophie R LiDepartment of Oral Health Sciences, University of Washington School of Dentistry, Seattle, Washington, USA.
Donald L ChiDepartment of Oral Health Sciences, University of Washington School of Dentistry, Seattle, Washington, USA.ORCID https://orcid.org/0000-0003-2289-7747

Funding

Identifying the missing heritability in recessive disorders using Joubert syndrome as a modelR01HD100730 · NICHD · UNIVERSITY OF WASHINGTON · PI DOHERTY, DANIEL · 2020 to 2023
$2.0M
Doherty P50HD103524Genetics Core sub 7791Joubert SyndromeJuulNICHD NIH HHS R01 HD100730Related Disorders Foundation
6 · The paper itself

Abstract

aimTo identify the behavioral correlates of caregiver-reported oral health of individuals with Joubert Syndrome (JS).

methodsThis cross-sectional study included 302 caregivers of individuals with JS from the JS registry who responded to a 56-item REDCap survey, and a purposive subset of 30 participants with JS for which a dental screening was completed. The primary outcome was caregiver-reported oral health of individuals with JS (good/very good vs. fair/poor). Logistic regression models were used to generate confounder-adjusted odds ratios (OR) and evaluate associations between oral health behaviors and caregiver-reported oral health of individuals with JS (p < 0.05).

resultsThe mean age of individuals with JS was 14.6 years (SD: 10.3). Most caregivers were female (84.1%), White (87.4%), non-Hispanic (91.1%), and reported annual household incomes above $100 000 (53.7%). Behaviors significantly associated with poorer oral health included not eating or drinking by mouth (OR = 4.52, p = 0.005), not toothbrushing daily (OR = 5.29, p < 0.001), and infrequent toothpaste use (OR = 3.68, p = 0.003). Screenings showed 40.0% had poor hygiene, 23.3% had untreated caries, and 46.7% had gingivitis.

conclusionsFuture efforts should focus on improving oral health behaviors to prevent dental disease in individuals with JS.

Indexed as

Abnormalities, MultipleCaregiversEye AbnormalitiesHealth BehaviorKidney Diseases, CysticOral HealthAdolescentAdultCerebellumChildCross-Sectional StudiesFemaleHumansMaleRetinacaregiver‐reported oral health statusJoubert Syndromeoral health behaviors

Identifiers

PMID40462298
PMCPMC12134190

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.