Evidence map›Paper›PMID 40455128›Full record

ArticleThe patient2025

Engaging Underserved Populations in Health Preference Research: Challenges and Strategies.

Paula Sinead Donnelly, Divya Mohan, Hannah Penton, Emily Wilson, Marco Boeri

Abstract read
PubMed Publisher
In one paragraph

Article in The patient, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Paula Sinead DonnellyQueen's University Belfast, Belfast, UK.ORCID 0000-0002-5629-6838
Divya MohanPatient Centered Outcomes, Open Health HEOR and Market Access, 20 Old Bailey, London, EC4M 7AN, UK.
Hannah PentonPatient Centered Outcomes, Open Health HEOR and Market Access, Rotterdam, The Netherlands.ORCID 0000-0001-9492-7875
Emily WilsonNorthern Ireland Lewy Body Dementia Research Advisory Group, Queen's University Belfast, Belfast, UK.
Marco BoeriQueen's University Belfast, Belfast, UK. marcoboeri@openhealthgroup.com.ORCID 0000-0001-7346-2132

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Health preference research plays a critical role in shaping healthcare policy and decision-making; however the underrepresentation of underserved populations challenges the validity and reliability of preference estimates. Despite efforts to diversify recruitment, health preference studies often have limited demographic diversity and non-representative sampling, leading to potentially biased findings that overlook the preferences of underserved populations. We discuss the importance of engaging underserved populations in health preference research from both ethical and research perspectives. We identify key challenges to the inclusion of underserved groups and outline strategies to address them, illustrating these with examples where possible. By prioritising inclusive and flexible methodologies, health preference researchers can generate more representative data, ensuring that estimates reflect the diverse needs and values of all populations. Ultimately, these efforts will support the development of more equitable, evidence-based, and impactful healthcare policies.

Indexed as

Medically Underserved AreaPatient PreferenceVulnerable PopulationsHealth PolicyHumansResearch Design

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.