ArticleHealth expectations : an international journal of public participation in health care and health policy2025
A Qualitative Study to Improve How We Partner With Patients and Families in Healthcare Improvement Collaboratives.
Article in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
1 citing paper in PubMed.
- Stimulating co-production in healthcare quality improvement: raising the interest of health professionals to collaborate with patients.Frontiers in health services · 2026Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
backgroundEngaging patients and family members in healthcare quality improvement (QI) is essential to meet the needs of those who receive care. The objective of this study was to describe the experience of patient/family partners (PFPs) in a national QI collaborative and to develop recommendations for best practices for patient engagement.
methodsWe conducted focus groups with PFPs in a national QI collaborative focused on improving transitions of care between cystic fibrosis (CF) and lung transplant programmes. Audio recordings were transcribed verbatim, coded inductively and analysed through thematic analysis. Member checking with PFPs, clinicians and team coaches was used to refine the findings and develop recommendations.
resultsFive PFPs participated in two focus groups, which revealed that PFPs (1) were motivated to participate as members of the QI team because they felt deeply connected to their CF care teams and wanted to help other patients, (2) felt engaged in the QI collaborative and appreciated the sense of community, support from the team coach and the opportunity to take ownership of projects, and (3) suggested improvements related to timing of meetings, compensation, being mindful when discussing sensitive information and setting clear expectations. Member checking revealed the need for equitable recruitment processes and tailoring the role to the individual participants. The findings were used to develop and change processes in the collaborative.
conclusionsThe structure of the national QI collaborative supported patient/family partnership through structured meetings and a focus on building relationships of mutual respect. The findings demonstrated the need for a more equitable recruitment process, better expectation setting and customisation of the role to the individual skills, needs and preferences of the participants. PATIENT OR PUBLIC CONTRIBUTION: Patients and family members of people living with CF participated in this study through focus groups and member checking. One CF patient (B.D.) is a co-author of this paper and contributed to data analysis, sensemaking, writing and editing.
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Registered trials
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