ReviewBMJ open2025
Embedding lived experience in mental health research: what we need to pack (and unpack) for the future in mental health research and translation.
Review in BMJ open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed.
- Views on mental health research in the context of schizophrenia: perspectives of peer support workers and researchers with lived experience - a qualitative study.Research involvement and engagement · 2026Article
- How, why, for whom, and in what contexts organisational and team dynamics shape, and are shaped by, service user researchers in higher education mental health research centres: a realist review protocol.Research involvement and engagement · 2026Review
- Article
- From tokenism to togetherness: the V.O.I.C.E. framework for safety-centred lived experience involvement in perinatal and parenting research.Research involvement and engagement · 2026Article
- The way we do things matters: the deep integration of lived experience in the a/part of the crowd project to respond to loneliness in young adults.Research involvement and engagement · 2026Article
- Partnering with people with lived experience in eating disorder research: conceptual and practical considerations.Journal of eating disorders · 2026Article
- Lessons learned from including Patient and Public Involvement members throughout research projects in Tic Disorder research.Research involvement and engagement · 2026Article
- Constructs, Predictive Factors and Measures: Insights From the Mental Health in the Moment (MHIM) Co-Production Panel.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Dismantling the Diagnostic Construct of Borderline Personality Disorder: A Critical Discourse Analysis.International journal of mental health nursing · 2026Article
- When psychiatry does not learn: Epistemic humility, ignorance culture, exclusion culture and diagnostic weaponisation.PLOS mental health · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The incorporation of lived experience in mental health research has been a challenge for decades, pushing the boundaries of research to focus on the priorities of those most impacted. The people who should be the ultimate beneficiaries of research and its translation hold significant knowledge about both the topics of research and the way it should be respectfully conducted. However, despite policy, funding and most recently publishing directives that purport to support genuine lived experience-focused and -led research, progress remains slow, and debates are frequently still dominated by non-lived experience researchers in positions of power. In this paper, we explore some of the factors we need to consider to genuinely progress in mental health lived experience research, including restrictive and exclusionary thinking on authenticity, the ability to speak from multiple perspectives and the deeply personal intersections of experience in lived experience researcher identities. We then describe the ALIVE National Centre Embedded Lived Experience Research Model and an associated National Strategy for Lived Experience in Mental Health Research as responses to these pervasive issues.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.