Evidence map›Paper›PMID 40444297›Full record

ArticleAging & mental health2025

'I just feel so unloved': using grounded theory to explore adult children's experiences of unresponsiveness from their parents living with dementia.

Kristie A Wood, Marie-Anne Suizzo, Joan K Monin, Dev Crasta, Hillary D Lum

Abstract readValidation Study
In one paragraph

Article in Aging & mental health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

5 authors.

Kristie A WoodDivision of General Internal Medicine, Department of Medicine, University of Colorado School of Medicine, Aurora, CO, USA.ORCID 0000-0003-2744-6646
Marie-Anne SuizzoDepartment of Educational Psychology, The University of Texas at Austin, Austin, CO, USA.ORCID 0000-0002-2569-7938
Joan K MoninDepartment of Social and Behavioral Sciences, Yale School of Public Health, New Haven, CT, USA.ORCID 0000-0002-1729-0230
Dev CrastaDepartment of Psychiatry, University of Rochester Medical Center, Rochester, NY, USA.ORCID 0000-0001-6304-8544
Hillary D LumDivision of Geriatric Medicine, Department of Medicine, University of Colorado School of Medicine, Aurora, CO, USA.ORCID 0000-0001-5637-3912

Funding

Multidisciplinary Research Training in Palliative CareT32AG044296 · NIA · UNIVERSITY OF COLORADO DENVER · PI STACY M FISCHER, JEAN S KUTNER · 2014 to 2026
$3.3M
Mentoring Investigators in Dementia Research by Engaging with Persons with Alzheimer's Disease and Care PartnersK24AG084999 · NIA · UNIVERSITY OF COLORADO DENVER · PI Hillary Lum · 2024 to 2026
$671k
NIA NIH HHS K24 AG084999NIA NIH HHS L32 AG089788NIA NIH HHS T32 AG044296
6 · The paper itself

Abstract

objectivesResponsiveness is the cornerstone of relationship satisfaction, and parents with dementia may become increasingly unresponsive due to cognitive impairment. During a child's development, their parent's responsiveness-ability to perceive and tend to their core concerns, significantly impacts the child's attachment and self-image. Given increasing dementia prevalence and its impact on caregivers' mental health, understanding unresponsiveness may enhance caregiver support.

methodThis grounded theory study aimed to develop a conceptual model of how unresponsiveness from parents with dementia manifests from the perspective of their adult child caregivers. Twelve caregivers of parents with dementia participated in semi-structured video interviews.

resultsParticipants experienced intense emotional pain, traumatizing relational shifts, and invalidation. Reactions to unresponsiveness included positive coping strategies (e.g. self-care), empathy for parents, and defense strategies (e.g. withdrawal due to perceiving unresponsiveness as threatening). Unresponsiveness was often interpreted as a reflection of participant self-worth, damaging their self-image.

conclusionA conceptual model illustrates the dynamic interplay of experiences, reactions, and meanings given to unresponsiveness. Novel findings suggest perceptions of unresponsiveness from parents with dementia may lead to disorganized attachment patterns and compromised self-images in adult child caregivers. The conceptual model may enhance caregiver support by helping clinicians normalize and address these experiences.

Indexed as

Adaptation, PsychologicalAdult ChildrenCaregiversDementiaObject AttachmentParent-Child RelationsParentsAdultAgedAged, 80 and overEmpathyFemaleGrounded TheoryHumansMaleMiddle Agedattachment theorycaregivingDementiagrounded theoryresponsiveness

Identifiers

PMID40444297
PMCPMC12354061

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.