Evidence map›Paper›PMID 40442830›Full record

ArticleBMC research notes2025

Barriers and facilitators to Parkinson's disease research participation amongst underrepresented groups.

Jennifer Adrissi, Anabel Marre, Maxwell Edwin Shramuk, Emily Zivin, Karen Williams, Danielle Larson

Abstract read
In one paragraph

Article in BMC research notes, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Trial
  2. Review
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Jennifer AdrissiDepartment of Neurology, University of California Los Angeles, 1100 Glendon Avenue 11th Floor, Los Angeles, CA, 90024, USA. jadrissi@mednet.ucla.edu.
Anabel MarreNorthwestern University, 633 Clark Street, Evanston, IL, 60208, USA.
Maxwell Edwin ShramukDepartment of Preventive Medicine, Northwestern University Feinberg School of Medicine, 680 N Lake Shore Drive Suite 1400, Chicago, IL, 60611, USA.
Emily ZivinDepartment of Neurology, Northwestern University Feinberg School of Medicine, 710 Lake Shore Drive 11th Floor, Chicago, IL, 60611, USA.
Karen WilliamsDepartment of Neurology, Northwestern University Feinberg School of Medicine, 710 Lake Shore Drive 11th Floor, Chicago, IL, 60611, USA.
Danielle LarsonDepartment of Neurology, Northwestern University Feinberg School of Medicine, 710 Lake Shore Drive 11th Floor, Chicago, IL, 60611, USA.

Funding

Parkinson's Foundation Centers of Excellence CORE Grant SP0060799
6 · The paper itself

Abstract

objectiveEven though the growing prevalence of Parkinson's disease (PD) is inclusive of ethnic and racial minority groups, these populations remain underrepresented in PD clinical research. This community-based study seeks to add to the limited knowledge on barriers and facilitators to underrepresented group (URG) enrollment in PD trials by assessing minority community members' PD and research knowledge, trust in medical researchers, and likelihood to participate in research based on various study design factors.

resultsOf the 97 total workshop participants, 80 completed demographic information, with the majority female (71%) and from minority racial groups -- African American/Black (37.5%) and East/Southeast Asian (45%). Levels of trust in medical researchers were generally high and improved post-workshop. Most respondents were likely to participate in trials requiring DNA or cognitive testing, and unlikely if requiring intravenous infusion or lumbar puncture. Facilitators to trial participation included offering transportation and financial incentives, while longer study visits and study duration were barriers.

Indexed as

Biomedical ResearchMinority GroupsParkinson DiseasePatient SelectionAdultAgedAsianBlack or African AmericanFemaleHumansMaleMiddle AgedClinical researchCommunity-academic partnershipParkinson’s diseaseUnderrepresented groups

Identifiers

PMID40442830
PMCPMC12121102

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.