Evidence map›Paper›PMID 40433651›Full record

ArticleFrontiers in dementia2025

From inclusion to empowerment: advancing equity through co-research with people living with dementia.

Lillian Hung, Joey Wong, Karen Lok Yi Wong, Emily Ong, Granville Johnson, Helen Rochford-Brennan, Jim Mann, Lester Gierach, Lynn Jackson, Mario Gregorio and 2 more

Abstract read
In one paragraph

Article in Frontiers in dementia, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Lillian HungSchool of Nursing, University of British Columbia, Vancouver, BC, Canada.
Joey WongSchool of Nursing, University of British Columbia, Vancouver, BC, Canada.
Karen Lok Yi WongSchool of Social Work, University of British Columbia, Vancouver, BC, Canada.
Emily OngIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, Canada.
Granville JohnsonIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, Canada.
Helen Rochford-BrennanIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, Canada.
Jim MannIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, Canada.
Lester GierachIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, Canada.
Lynn JacksonIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, Canada.
Mario GregorioIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, Canada.
Mary Beth WightonIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, Canada.
Phyllis FehrIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Too often, people living with dementia are spoken for rather than spoken with. This reflects deeply embedded assumptions/biases about people living with dementia in our society. This article explores the experiences and insights of individuals with dementia, positioning empowerment as a foundational strategy to advance social citizenship and equity. We collaboratively on more than a decade of shared work in research and advocacy. Our collective analysis identifies three key dimensions essential for meaningful empowerment: (a) recognizing strengths and building capacities, (b) equitable leadership, and (c) supportive environments and learning together. Our findings demonstrate that intentional, respectful collaboration produces extensive social, political, and healthcare benefits, actively challenging inequities and fostering a deeper sense of belonging and contribution.

Indexed as

dementia researchempowermenthealth researchPatient and Public Involvement (PPI)patient engagement

Identifiers

PMID40433651
PMCPMC12106466

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.