Evidence map›Paper›PMID 40426232›Full record

ArticleBMC psychology2025

"It is today that counts, and today everything is fine": coping strategies utilized by parents of children treated for cancer who seek psychological support - a qualitative study.

Johan Lundgren, Christina Reuther, Paul Farrand, Nina Lutvica, Ella Thiblin, Louise von Essen, Joanne Woodford

Abstract read
In one paragraph

Article in BMC psychology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Johan Lundgren *Department of Women's and Children's Health, CIRCLE - Complex Intervention Research in Health and Care, Uppsala University, Dag Hammarskjölds väg 14B, Uppsala, 751 05, Sweden.
Christina Reuther *Department of Women's and Children's Health, CIRCLE - Complex Intervention Research in Health and Care, Uppsala University, Dag Hammarskjölds väg 14B, Uppsala, 751 05, Sweden.
Paul FarrandClinical Education, Development, and Research (CEDAR), Psychology, Faculty of Health and Life Sciences, University of Exeter, Exeter, UK.
Nina LutvicaDepartment of Women's and Children's Health, CIRCLE - Complex Intervention Research in Health and Care, Uppsala University, Dag Hammarskjölds väg 14B, Uppsala, 751 05, Sweden.
Ella ThiblinDepartment of Women's and Children's Health, CIRCLE - Complex Intervention Research in Health and Care, Uppsala University, Dag Hammarskjölds väg 14B, Uppsala, 751 05, Sweden.
Louise von Essen *Department of Women's and Children's Health, CIRCLE - Complex Intervention Research in Health and Care, Uppsala University, Dag Hammarskjölds väg 14B, Uppsala, 751 05, Sweden. louise-von.essen@uu.se.
Joanne Woodford *Department of Women's and Children's Health, CIRCLE - Complex Intervention Research in Health and Care, Uppsala University, Dag Hammarskjölds väg 14B, Uppsala, 751 05, Sweden.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundChildhood cancer treatment completion is a period of vulnerability for parents and is associated with depression, anxiety, restrictions on daily life, and negative socioeconomic consequences. Understanding what helpful and unhelpful coping strategies parents utilize to manage cancer-related distress and concerns may inform the development of tailored psychological support. However, coping strategies used by parents who seek psychological support related to their child's cancer are not well described. To address this gap, we conducted an embedded semi-structured interview study with parents enrolled into the feasibility study ENGAGE. The overall aim of ENGAGE was to examine the acceptability and feasibility of an internet-administered, guided, low intensity cognitive behavioral therapy based self-help intervention, EJDeR. Study aims were to: (1) describe coping strategies used by parents who seek psychological support after end of treatment to cope with cancer-related distress and concerns and (2) consider these coping strategies to inform ongoing adaptations to the EJDeR intervention, taking potential gender differences in coping and subsequent support needs into consideration.

methodSeventy-three semi-structured interviews were conducted. Data was coded using inductive manifest content analysis and subsequently triangulated with a secondary theory-driven data analysis guided by the control-based model of coping.

resultsParents used three primary control coping strategies: utilizing tools and techniques, striving for a healthy and balanced lifestyle, and seeking support. Parents used three secondary control coping strategies: accepting and refocusing, adapting to the situation with help from others, and distracting temporarily. Parents used one disengagement-focused coping strategy: avoiding and distancing.

conclusionsParents adopted both primary and secondary control coping strategies as well as disengagement-focused coping strategies in accordance with the control-based model of coping. Findings supported the choice of low intensity cognitive behavioral therapy techniques used in the EJDeR intervention to target behavioral and experiential avoidance (i.e., disengagement-focused coping). A need to emphasize the importance of seeking social support in future EJDeR adaptations was identified. Understanding coping strategies used by parents of children off treatment who seek psychological support may inform the development of other psychological interventions for the population.

trial registrationISRCTN57233429 ( https://doi.org/10.1186/ISRCTN57233429 ; registration date 19/04/2018).

Indexed as

Adaptation, PsychologicalNeoplasmsParentsStress, PsychologicalAdolescentAdultChildCognitive Behavioral TherapyCoping SkillsFeasibility StudiesFemaleHumansMaleMiddle AgedQualitative ResearchSocial SupportCancerChildhood cancerCognitive behavioral therapyCoping strategiesInternet-administered interventionQualitative research

Identifiers

PMID40426232
PMCPMC12108027

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.