Evidence map›Paper›PMID 40420247›Full record

ArticleResearch involvement and engagement2025

Partnering for impact: best practices for planning in-person academic events with Patient Partners involvement- Lessons learned from Diabetes Action Canada.

Tracy McQuire, Jamie Boisvenue, Katharine Mackett, Jasmine Maghera, Julie Makarski, Al Martin, Linxi Mytkolli, Mildred Lim, Conrad Pow, Holly O Witteman

Abstract readLetter
In one paragraph

Article in Research involvement and engagement, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Tracy McQuireDiabetes Action Canada, Toronto, ON, Canada. Tracy.McQuire@uhn.ca.
Jamie BoisvenueDiabetes Action Canada, Toronto, ON, Canada.
Katharine MackettDiabetes Action Canada, Toronto, ON, Canada.
Jasmine MagheraDiabetes Action Canada, Toronto, ON, Canada.
Julie MakarskiDiabetes Action Canada, Toronto, ON, Canada.
Al MartinDiabetes Action Canada, Toronto, ON, Canada.
Linxi MytkolliDiabetes Action Canada, Toronto, ON, Canada.
Mildred LimDiabetes Action Canada, Toronto, ON, Canada.
Conrad PowDiabetes Action Canada, Toronto, ON, Canada.
Holly O WittemanDiabetes Action Canada, Toronto, ON, Canada.

Funding

CIHR KMI 181877
6 · The paper itself

Abstract

Health-related academic events that focus on patient-oriented research should prioritize the needs and interests of those most affected by their outcomes. Diabetes Action Canada (DAC) has hosted six in-person workshops over eight years, bringing together over 100 participants from research, healthcare delivery, government, non-profit organizations, and communities with lived experience of diabetes. This paper outlines key lessons and best practices from Diabetes Action Canada's collaborative approach to workshop co-design with Patient Partners. For the 2024 workshop, a planning committee, largely composed of Patient Partners, played a central role in shaping the agenda. Their contributions ensured active patient participation, addressed power imbalances, fostered inclusivity, and created supportive spaces. Strategies such as co-designed agendas, symbolic markers for patient-led presentations, and facilitated networking sessions effectively enhanced engagement. Evaluations highlighted the importance of equitable participation and multidisciplinary collaboration, emphasizing the scalability of DAC's co-design principles for diverse research and healthcare contexts. These insights provide a foundation for inclusive, impactful, and patient-centered event planning.

Indexed as

Co-design with Patient PartnersCollaborative spaceMultidisciplinary collaborationPatient authorPatient engagementPatient-led eventsPatient-oriented research

Identifiers

PMID40420247
PMCPMC12105301

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.