ArticleMovement disorders : official journal of the Movement Disorder Society2025
Sex and Racial/Ethnic Differences in End-of-Life Care Preferences in Persons with Parkinson's Disease and Related Disorders.
Article in Movement disorders : official journal of the Movement Disorder Society, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
3 citing papers in PubMed.
- Priorities to Improve Caregiving Experiences in Parkinson Disease: A Qualitative Study of Multiple Stakeholders.Neurology. Clinical practice · 2026Article
- Parkinson's through a cultural lens: Diversity in disease expression and care.Journal of Parkinson's disease · 2026Review
- Documented End-of-Life Preferences of People With Parkinson's Disease or Parkinsonism Across Europe.Movement disorders clinical practice · 2026Article
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Authors and funding
8 authors.
Funding
Abstract
backgroundIn persons with Parkinson's disease (PD) and related disorders (PDRD), rates of end-of-life (EoL) hospitalization are greatest, and rates of hospice utilization lowest, among men and persons of color. Reasons for these differences are unknown.
objectiveThe aim of this study was to determine whether attitudes toward EoL care differ by sex and race/ethnicity in persons with PDRD.
methodsIn this concurrent mixed-methods study, participants with PDRD were recruited from two movement disorders centers. Attitudes toward EoL care were determined using a modified Attitudes of Older People to End-of-Life Issues questionnaire and focus groups. Questionnaire responses were compared using Wilcoxon rank-sum and multinomial logistic regression models, adjusting for sociodemographic factors. Focus group transcripts were analyzed using a constant comparative analytic framework.
resultsWe recruited 255 participants with PDRD (45% female, 25% non-White). There were no differences in questionnaire responses between participants with PD and atypical parkinsonism. In adjusted models, women with PDRD were more likely than men to prefer religious/spiritual support at the end of life. Compared with White participants with PDRD, non-White participants were more likely to consider EoL hospitalization, less likely to consider medical aid in dying, and less familiar with palliative care. In four focus groups involving 14 questionnaire respondents, contributors to EoL decision-making included medical knowledge/information, personal experiences, family dynamics, religion/spirituality, and resources/cost.
conclusionsEoL care preferences differ by sex and race/ethnicity in persons with PDRD. These preferences are influenced by multiple factors and may contribute to differential EoL outcomes, emphasizing the need for individualized, culturally competent EoL care. © 2025 The Author(s). Movement Disorders published by Wiley Periodicals LLC on behalf of International Parkinson and Movement Disorder Society.
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