Evidence map›Paper›PMID 40407679›Full record

ReviewEuropean burn journal2025

The Life Impact Burn Recovery Evaluation (LIBRE) Profile: Historical Overview and Future Directions.

Colleen M Ryan, Jeffrey C Schneider, Pengsheng Ni, Mary D Slavin, Amy Acton, Ananya Vasudevan, Allan Sosa-Ebert, Lewis E Kazis

Abstract readReview
In one paragraph

Review in European burn journal, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Colleen M RyanDepartment of Surgery, Massachusetts General Hospital, Harvard Medical School, Boston, MA 02114, USA.ORCID 0000-0002-6455-936X
Jeffrey C SchneiderDepartment of Physical Medicine and Rehabilitation, Schoen Adams Research Institute, Rehabilitation Outcomes Center (ROC), Spaulding Rehabilitation Hospital, Harvard Medical School, Boston, MA 02129, USA.
Pengsheng NiDepartment of Health Law, Policy, and Management, Boston University School of Public Health, Boston, MA 02118, USA.ORCID 0000-0003-1774-2185
Mary D SlavinDepartment of Physical Medicine and Rehabilitation, Schoen Adams Research Institute, Rehabilitation Outcomes Center (ROC), Spaulding Rehabilitation Hospital, Harvard Medical School, Boston, MA 02129, USA.
Amy ActonPhoenix Society for Burn Survivors, Kentwood, MI 49508, USA.
Ananya VasudevanDepartment of Anesthesiology, Tufts Medical Center, Boston, MA 02111, USA.
Allan Sosa-EbertElmhurst Hospital Center-Internal Medicine Residency Program, Elmhurst, New York, NY 11373, USA.
Lewis E KazisDepartment of Physical Medicine and Rehabilitation, Schoen Adams Research Institute, Rehabilitation Outcomes Center (ROC), Spaulding Rehabilitation Hospital, Harvard Medical School, Boston, MA 02129, USA.

Funding

National Institutes on Disability, Independent Living, and Rehabilitation Research #90DPBU0001, #90DPBU0008
6 · The paper itself

Abstract

The Life Impact Burn Recovery Evaluation (LIBRE) Profile was developed to assess long-term social participation outcomes for adult burn survivors. Traditional clinical burn recovery outcomes focus on early physical complications and psychosocial issues, but there is a growing need for quantitative measures of long-term recovery that assess experiences deemed relevant to burn survivors. The LIBRE Profile, co-produced with input from burn survivors and clinicians and grounded in the World Health Organization's International Classification of Functioning, Disability and Health (WHO-ICF) conceptual framework, addresses the measurement gap by focusing on six domains of social participation: social interactions, social activities, family and friends, work and employment, romantic relationships, and sexual relationships. The LIBRE Profile uses Item Response Theory (IRT) and computer adaptive tests (CAT) to minimize respondent burden while maintaining accuracy. Psychometric evaluations have validated the LIBRE Profile as a reliable and clinically useful tool that can help clinicians and burn survivors monitor recovery and inform personalized care. Future work includes LIBRE Profile development for pediatric populations, further international language translations, and the development of an APP for broader personal and clinical use. This paper provides a comprehensive overview of the LIBRE Profile's development, psychometric foundations, and future directions, advocating for its adoption in clinical practice and burn survivor communities.

Indexed as

burncommunity participationLIBRElife impact burn recovery evaluationlong-term outcomepatient reported outcome measurePROMrehabilitationreintegrationthermal injury

Identifiers

PMID40407679
PMCPMC12101217

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.