ArticleDiabetic medicine : a journal of the British Diabetic Association2025
Exploring the social experiences, stigma and discrimination, faced by women with gestational diabetes: A collaborative qualitative study and item-pool development.
Article in Diabetic medicine : a journal of the British Diabetic Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- From language matters to stigma-free communication in diabetes: Evolution, challenges, and next steps.Diabetic medicine : a journal of the British Diabetic Association · 2026Review
- From narratives to numbers and back: Assessing the psychosocial aspects of diabetes in the era of high technology with emerging qualitative and quantitative methodologies.Diabetic medicine : a journal of the British Diabetic Association · 2026Review
- Meaningful engagement of lived experience in diabetes research and health service improvement: A rapid review of barriers to and enablers for community involvement among adults with type 2 diabetes.Diabetic medicine : a journal of the British Diabetic Association · 2026Review
- Understanding interconception experiences of women with previous gestational diabetes mellitus across Ireland.Diabetic medicine : a journal of the British Diabetic Association · 2026Article
- 'They use the little information they have to pass judgement': A framework analysis of type 1 diabetes stigma experienced by UK adults living with type 1 diabetes.Diabetic medicine : a journal of the British Diabetic Association · 2026Article
- Psychometric validation of the Internalised Stigma Scale for Gestational Diabetes Mellitus (ISS-GDM): a cross-sectional study.BMJ open · 2026Article
- Exploring the social experiences, stigma and discrimination, faced by women with gestational diabetes: A collaborative qualitative study and item-pool development.Diabetic medicine : a journal of the British Diabetic Association · 2025Article
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Authors and funding
10 authors.
Funding
Abstract
aimTo explore experiences of stigma related to gestational diabetes (GDM) among Australian women and collaboratively develop a comprehensive item pool to assess experienced and internalised GDM-specific stigma.
methodsA GDM Lived Experience Advisory Group (G-LEAG; n = 4) informed all aspects of a two-phase qualitative research process. Phase 1 included semi-structured online interviews with 20 women with current or recent GDM. Reflexive thematic analysis identified drivers and facilitators, markers, manifestations, impacts and protective mechanisms of GDM stigma. Findings informed the development of an item pool, debriefed and refined with a subset of 10 participants in Phase 2 interviews.
resultsAll participants perceived, experienced, anticipated and/or internalised GDM-specific stigma. They perceived GDM-specific stigma to be driven by stereotypes and blame, and facilitated by societal norms regarding motherhood and pregnancy, media messaging, as well as inflexible and inconsistent healthcare policies. They reported social, emotional and self care impacts, as well as perceived loss of autonomy in clinical care. They proposed potential protective mechanisms, including social and healthcare support, self-belief and self-compassion, and community awareness. In cognitive debriefing interviews, women reported that the draft items comprehensively covered their experiences of GDM-specific stigma and offered suggestions for refinement, resulting in a 74-item pool.
conclusionsFindings provide rich insights into the experiences and impacts of stigma among women with GDM in Australia and resulted in a co-designed GDM-specific stigma item pool. The item pool is ready for psychometric assessment and item reduction, which will enable future quantification of the occurrence, impacts and mechanisms of GDM-specific stigma.
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