Evidence map›Paper›PMID 40397794›Full record

ArticleThe American journal of bioethics : AJOB2026

Mind Care: The Moral Significance of the Dementia Caregiving Dyad.

Andrew Peterson, Emily A Largent, Jason Karlawish

Abstract read
In one paragraph

Article in The American journal of bioethics : AJOB, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

3 authors.

Andrew PetersonUniversity of Pennsylvania.ORCID 0000-0001-5192-3348
Emily A LargentUniversity of Pennsylvania.ORCID 0000-0002-7536-5077
Jason KarlawishUniversity of Pennsylvania.

Funding

Training Core (I)U54AG063546 · NIA · BROWN UNIVERSITY · PI Vincent Mor · 2019 to 2026
$125.9M
Adapting supported decision making to promote wellbeing and improve health outcomes for persons living with Alzheimer's disease and Alzheimer's disease related dementiasR01AG077111 · NIA · UNIVERSITY OF PENNSYLVANIA · PI Emily Largent · 2022 to 2026
$3.1M
UNDERSTANDING HOW THE STUDY PARTNER REQUIREMENT IMPACTS THE DISCOVERY AND TRANSLATION OF PRECLINICAL ALZHEIMERS DISEASEK01AG064123 · NIA · UNIVERSITY OF PENNSYLVANIA · PI LARGENT, EMILY · 2019 to 2023
$637k
Caregivers' Experiences with and Perspectives on Communication with Persons with DementiaR21AG069805 · NIA · UNIVERSITY OF PENNSYLVANIA · PI KARLAWISH, JASON H, PETERSON, ANDREW H · 2020 to 2021
$452k
NIA NIH HHS K01 AG064123NIA NIH HHS R01 AG077111NIA NIH HHS R21 AG069805NIA NIH HHS U54 AG063546
6 · The paper itself

Abstract

Caregiving for persons living with dementia has long been conceived as a series of tasks that sustain the body. Tasks such as these describe the work of caregiving for a person living with dementia, but they do not adequately define the practice of caregiving. The central premise of this essay is that caregiving is body care, but it is also mind care. In this article, we describe how mind care occurs within the caregiving dyad. Utilizing the extended mind thesis developed in the philosophical literature, we characterize the dyad as a kind of mental extension. We then suggest that mental extension may also be related to the support of the self and the moral person. We conclude by highlighting how this theory informs dementia care and policy.

Indexed as

CaregiversDementiaMoralsHumansAgingAlzheimer’s diseasedecision makingdisability, chronic conditions, and rehabilitationneurodegenerative diseaseneurology

Identifiers

PMID40397794
PMCPMC12311849

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.