Evidence map›Paper›PMID 40389958›Full record

ArticleBMC medical informatics and decision making2025

The Beacon Wiki: Mapping oncological information across the European Union.

Veronica Coppini, Giulia Ferraris, Maria Vittoria Ferrari, Dario Monzani, Margherita Dahò, Elisa Fragale, Roberto Grasso, Ricardo Pietrobon, Aline Machiavelli, Lucas Teixeira and 2 more

Abstract read
In one paragraph

Article in BMC medical informatics and decision making, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Review
  2. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Veronica CoppiniApplied Research Division for Cognitive and Psychological Science, IEO, European Institute of Oncology IRCCS, Milan, Italy. veronica.coppini@ieo.it.
Giulia FerrarisApplied Research Division for Cognitive and Psychological Science, IEO, European Institute of Oncology IRCCS, Milan, Italy.
Maria Vittoria FerrariApplied Research Division for Cognitive and Psychological Science, IEO, European Institute of Oncology IRCCS, Milan, Italy.
Dario MonzaniApplied Research Division for Cognitive and Psychological Science, IEO, European Institute of Oncology IRCCS, Milan, Italy.
Margherita DahòDepartment of Psychology, Educational Science and Human Movement (SPPEFF), University of Palermo, Palermo, Italy.
Elisa FragaleApplied Research Division for Cognitive and Psychological Science, IEO, European Institute of Oncology IRCCS, Milan, Italy.
Roberto GrassoApplied Research Division for Cognitive and Psychological Science, IEO, European Institute of Oncology IRCCS, Milan, Italy.
Ricardo PietrobonSporeData OÜ Tallin, Tallinn, Estonia.
Aline MachiavelliSporeData OÜ Tallin, Tallinn, Estonia.
Lucas TeixeiraSporeData OÜ Tallin, Tallinn, Estonia.
Victor GalvãoSporeData OÜ Tallin, Tallinn, Estonia.
Gabriella PravettoniApplied Research Division for Cognitive and Psychological Science, IEO, European Institute of Oncology IRCCS, Milan, Italy.

Funding

European Union's EU4Health Programme (EU4H) 101080005
6 · The paper itself

Abstract

backgroundAccessing comprehensive oncological data is essential for efficient and quality healthcare delivery and research. However, obstacles, such as data fragmentation and privacy concerns which may hold back progress in this area, exist. The Cancer Care Beacon project addresses these barriers consolidating oncological information across the 27 member states of the European Union (EU) with the goal of creating a Beacon wiki free data online repository.

methodsThe Cancer Care Beacon project involves thorough data collection from various sources, including hospital websites, PubMed, ClinicalTrials.gov, and national health institutions. The main focus of metadata retrieval is placed on descriptive details about data sources, thus warranting compliance with privacy regulations and ethical standards. In addition, manual examination and semi-automated methods are included in the process, enabling a registry of administrative databases, cancer registries, and other relevant databases.

resultsProject findings demonstrate the success in the realisation of a comprehensive repository of oncological data sources across the EU assisting informed decision-making regarding the selection and utilisation of resources. Still, challenges such as limited accessibility and low engagement from database providers persist.

conclusionThe Beacon Wiki represents a significant step in addressing disparities in oncological data access and advancing cancer care and research in Europe. By providing comprehensive metadata on cancer-related data sources, Beacon Wiki empowers stakeholders and promotes collaboration in cancer care and research. Continuous efforts are needed to enhance data accessibility and engagement from database providers, ultimately improving data-driven decision-making and patient outcomes in the EU.

Indexed as

Databases, FactualInternetMedical OncologyNeoplasmsEuropean UnionHumansRegistriesCancer care disparitiesCancer registriesData repositoryMetadataOncology

Identifiers

PMID40389958
PMCPMC12090651

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.