Evidence map›Paper›PMID 40386317›Full record

ArticleJPGN reports2025

Gluten-free schooling: Navigating challenges and triumphs for children with celiac disease.

Vanessa Weisbrod, Nasim Khavari, Imad Absah, Dale Lee, Danny Mallon, Catherine Raber, Vahe Badalyan, Mary Shull, Ritu Verma, Ashley Dunn and 8 more

Abstract read
In one paragraph

Article in JPGN reports, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors.

Vanessa WeisbrodCeliac Disease Foundation Boston Massachusetts USA.
Nasim KhavariStanford University Palo Alto California USA.
Imad AbsahMayo Clinic Rochester New York USA.
Dale LeeSeattle Children's Hospital Seattle Washington USA.
Danny MallonCincinnati Children's Hospital Cincinnati Ohio USA.
Catherine RaberChildren's National Hospital Washington District of Columbia USA.
Vahe BadalyanChildren's National Hospital Washington District of Columbia USA.
Mary ShullChildren's National Hospital Washington District of Columbia USA.
Ritu VermaUniversity of Chicago Medicine Chicago Illinois USA.
Ashley DunnStanford University Palo Alto California USA.
Anava WrenStanford University Palo Alto California USA.
Farah MardiniStanford University Palo Alto California USA.
Lisa FaheyChildren's Hospital of Philadelphia Philadelphia Pennsylvania USA.
Jocelyn SilvesterBoston Children's Hospital Boston Massachusetts USA.
Tracy EdigerNationwide Children's Hospital Columbus Ohio USA.
Maureen LeonardMass General Hospital for Children Boston Massachusetts USA.
Javier A Lopez-RiveraStanford University Palo Alto California USA.
Hilary JerichoStanford University Palo Alto California USA.ORCID https://orcid.org/0009-0007-9248-1911

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objectives: Celiac disease (CeD), an autoimmune disorder triggered by gluten ingestion, induces intestinal inflammation and varied symptoms. Treatment entails a strict gluten-free diet (GFD), posing challenges for students, especially in schools with limited food choices. Nonadherence worsens symptoms, yet research on CeD's impact on students is scarce. Methods: The CeliacKIDS study, conducted across 11 United States academic medical centers, evaluated gluten exposure risk in pediatric CeD patients via a cross-sectional survey from August 2020 to August 2021. Participants recruited from treating institutions were approved by respective Institutional Review Boards. Results: One hundred and sixty children aged 5-18 (65% female, 34% male, 1% other) participated. Only 12% had GF food options at school, 31% brought their own for celebrations, and 41% lacked gluten free (GF) snacks after school. Thirty-six percent lacked a 504 plan, with 5% misinformed. Hand hygiene concerns included 24% using sanitizer and 10% rarely washing hands before eating. Sixty-two percent disclosed CeD, 35% when prompted, and 3% refused, mainly 13-year-old males. Two percent hesitated to request GF options, and 2% consumed potentially gluten-containing food from friends. Conclusion: Many US schools provide GF accommodations under the Americans with Disabilities Act (ADA) but lack national standards. Diverse GF options and education on GF-safe practices are crucial for GFD adherence. Discrepancies in parent-child perceptions emphasize the need for better communication. Adolescents, particularly females aged 12-13 with 2+ years on a GF diet, face higher risks. Transparent family-school communication is vital for optimizing the school experience and ensuring GFD adherence. Comprehensive nationwide school training is essential for celiac patients' well-being.

Identifiers

PMID40386317
PMCPMC12078044

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.