Evidence map›Paper›PMID 40380967›Full record

ArticleThe Journal of adolescent health : official publication of the Society for Adolescent Medicine2025

Adolescent Comfort With Sexual Orientation and Gender Identity Collection and Preferences for Electronic Health Record Documentation in the Ambulatory Setting.

Jessica Pourian, Jhanavi Kapadia, Melinda Li, Phinnara Has, Jason Rafferty, Syd Loiselle, Abigail Donaldson, Emily B Allen, Jack C Rusley

Abstract read
In one paragraph

Article in The Journal of adolescent health : official publication of the Society for Adolescent Medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

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5 · Who and what money

Authors and funding

9 authors.

Jessica PourianDepartment of Pediatrics, Warren Alpert Medical School of Brown University, Providence, Rhode Island. Electronic address: jessica.pourian@ucsf.edu.
Jhanavi KapadiaDivision of Adolescent Medicine, Department of Pediatrics, Hasbro Children's Hospital, Warren Alpert Medical School of Brown University, Providence, Rhode Island.
Melinda LiWarren Alpert Medical School of Brown University, Providence, Rhode Island.
Phinnara HasLifespan Biostatistics, Epidemiology and Research Design, Rhode Island Hospital, Providence, Rhode Island.
Jason RaffertyDivision of Adolescent Medicine, Department of Pediatrics, Hasbro Children's Hospital, Warren Alpert Medical School of Brown University, Providence, Rhode Island.
Syd LoiselleDivision of Adolescent Medicine, Department of Pediatrics, Hasbro Children's Hospital, Warren Alpert Medical School of Brown University, Providence, Rhode Island.
Abigail DonaldsonDivision of Adolescent Medicine, Department of Pediatrics, Hasbro Children's Hospital, Warren Alpert Medical School of Brown University, Providence, Rhode Island.
Emily B AllenDivision of Adolescent Medicine, Department of Pediatrics, Hasbro Children's Hospital, Warren Alpert Medical School of Brown University, Providence, Rhode Island.
Jack C RusleyDivision of Adolescent Medicine, Department of Pediatrics, Hasbro Children's Hospital, Warren Alpert Medical School of Brown University, Providence, Rhode Island; Department of Health Services, Policy, and Practice, Brown University School of Public Health, Providence, Rhode Island.

Funding

A family-based intervention to improve HIV pre-exposure prophylaxis uptake for adolescent sexual minority malesK23MH123335 · NIMH · RHODE ISLAND HOSPITAL · PI RUSLEY, JACK · 2020 to 2024
$843k
NIMH NIH HHS K23 MH123335
6 · The paper itself

Abstract

purposeAssessing sexual orientation and gender identity (SOGI) is a key element in delivering high quality health care to adolescents and young adults (AYAs). However, AYA perspectives on SOGI data collection remain understudied. Therefore, we aimed to assess perceived importance of and comfort with SOGI data collection.

methodsAYA attending outpatient visits completed an anonymous survey. We assessed importance (Likert scale: 5 = strongly disagree to 1 = strongly agree) and comfort with various collection methods (yes/no), as well as willingness to share name and/or pronouns in the electronic health record (EHR) (yes/no). AYA were classified as transgender and gender diverse (TGD) versus cisgender; and lesbian, gay, bisexual, other versus heterosexual. Mean scores were calculated and t-tests used to compare importance across groups; Fisher's exact tests were used to compare comfort and EHR preferences across groups.

resultsOf 260 AYA ages 10 to 26, 50% were TGD and 52% were lesbian, gay, bisexual, other. The mean importance of gender identity among all AYA was 3.9, and TGD had higher ratings than cisgender AYA (4.4 vs. 3.6, p < .001). There were no differences between cisgender and TGD AYA with respect to sexual orientationimportance (3.6 vs. 3.3, p = .08). Ninety-six percent of AYA were comfortable with one or more methods of SOGI collection. Nearly all (96%) TGD youth were willing to share both their name and pronouns in the EHR. DISCUSSION: Most AYA consider SOGI collection important and are comfortable being asked in clinic. Nearly all TGD youth preferred sharing both their name and pronouns in the EHR.

Indexed as

Ambulatory CareElectronic Health RecordsGender IdentityPatient PreferenceSexual and Gender MinoritiesSexual BehaviorAdolescentAdultChildFemaleHumansMaleSurveys and QuestionnairesYoung AdultAdolescent confidentialityData privacySexual orientation and gender identitySOGI

Identifiers

PMID40380967
PMCPMC12440126

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.