Evidence map›Paper›PMID 40380335›Full record

ArticleBMC psychiatry2025

The acceptability and feasibility of an internet-administered, guided, low-intensity cognitive behavioural therapy intervention for parents of children treated for cancer: findings from a qualitative study involving public contributors.

Ella Thiblin, Johan Lundgren, Mattias Bergqvist, Tho Huynh, Christina Reuther, Sandra Rösler, Joanne Woodford, Louise von Essen

Abstract read
In one paragraph

Article in BMC psychiatry, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Ella ThiblinCIRCLE- Complex Intervention Research in Health and Care, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.ORCID 0000-0002-9944-1417
Johan LundgrenCIRCLE- Complex Intervention Research in Health and Care, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.ORCID 0000-0003-3964-747X
Mattias BergqvistENGAGE Study Public Contribution Group, Uppsala, Sweden.
Tho HuynhENGAGE Study Public Contribution Group, Uppsala, Sweden.
Christina ReutherCIRCLE- Complex Intervention Research in Health and Care, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.ORCID 0000-0001-6151-0432
Sandra RöslerENGAGE Study Public Contribution Group, Uppsala, Sweden.
Joanne WoodfordCIRCLE- Complex Intervention Research in Health and Care, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden. joanne.woodford@uu.se.ORCID 0000-0001-5062-6798
Louise von EssenCIRCLE- Complex Intervention Research in Health and Care, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden. louise-von.essen@uu.se.ORCID 0000-0001-5816-7231

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundDespite parents of children treated for cancer commonly reporting psychological difficulties such as symptoms of depression and anxiety, there is a lack of evidence-based psychological interventions tailored to their needs. We therefore developed an internet-administered, guided, low-intensity cognitive behavioural therapy-based self-help intervention (EJDeR). We examined the acceptability and feasibility of the intervention and study procedures in the single-arm feasibility trial ENGAGE. Results suggested the intervention and study procedures are feasible and acceptable. However, a need for modifications and refinements to the intervention and study procedures was identified. We conducted a qualitative interview study to explore the acceptability and feasibility of the intervention and study procedures from the perspective of parents to inform modifications and refinements to the intervention and study procedures.

methodsSemi-structured interviews were conducted with 52 parents (17 fathers, 35 mothers). A public contribution group (three parents of children treated for cancer) analysed the data independently from the research team and contributed to dissemination. An inductive content analysis was performed using the Framework Method.

resultsThe intervention was perceived as acceptable and relevant, and parents expressed positive attitudes toward internet-administered support. However, parents identified a need for adaptations to intervention content, e.g., a greater focus on the family, trauma, and the cancer experience. Barriers to engagement were also identified, including technical difficulties and a need for modifications to improve intervention user-friendliness and smartphone and/or tablet compatibility. Study procedures were also perceived as acceptable and feasible. However, a need was identified to improve parents' understanding of the study and to reduce the amount and frequency of assessments. The public contributors' analysis was similar to that of the research team. However, the research team overlooked important nuances. For example, the public contributors' analysis highlighted parents' difficulties distinguishing between the intervention and study procedures.

conclusionsThe intervention and study procedures were perceived as acceptable and feasible. However, the need for important modifications and refinements were suggested to improve future acceptability and feasibility. Involving public contributors in the analysis resulted in developing a more comprehensive and nuanced understanding of the data.

trial registrationISRCTN 57,233,429 (Registration date: 19/04/2018); ISRCTN 18,404,129 (Registration date: 25/11/2019).

Indexed as

Cognitive Behavioral TherapyInternet-Based InterventionNeoplasmsParentsPatient Acceptance of Health CareAdultAnxietyChildFeasibility StudiesFemaleHumansInternetMaleMiddle AgedQualitative ResearchChildhood cancerInternet-administered interventionsLow-intensity CBTParentsPublic contribution in research

Identifiers

PMID40380335
PMCPMC12084959

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.