Evidence map›Paper›PMID 40377248›Full record

Observational studyJournal of advanced nursing2026

Factors Affecting the Quality of Life of Parents of Children With Spina Bifida: The Mediating Role of Family Resilience.

Kyua Kim, Hyeseon Yun, Hooyun Lee, Kijun Song, Marcia Van Riper, Eun Kyoung Choi

Abstract readObservational Study
In one paragraph

Observational study in Journal of advanced nursing, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Kyua KimCollege of Nursing and Brain Korea 21 FOUR Project, Yonsei University, Seoul, South Korea.ORCID https://orcid.org/0009-0006-2971-2927
Hyeseon YunCollege of Nursing and Brain Korea 21 FOUR Project, Yonsei University, Seoul, South Korea.ORCID https://orcid.org/0000-0002-9272-8562
Hooyun LeeCollege of Nursing and Brain Korea 21 FOUR Project, Yonsei University, Seoul, South Korea.ORCID https://orcid.org/0000-0001-7346-7902
Kijun SongCollege of Nursing and Mo-Im Kim Nursing Research Institute, Yonsei University, Seoul, South Korea.ORCID https://orcid.org/0000-0003-2505-4112
Marcia Van RiperSchool of Nursing, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.ORCID https://orcid.org/0000-0002-5908-9033
Eun Kyoung ChoiCollege of Nursing and Mo-Im Kim Nursing Research Institute, Yonsei University, Seoul, South Korea.ORCID https://orcid.org/0000-0003-4622-2437

Funding

Brain Korea 21 FOUR Project funded by the National Research Foundation (NRF) of Korea, Yonsei University College of NursingNational Research Foundation of Korea (NRF) Grant funded by the Korea government Ministry of Science and ICT (MIST) No.2022R1A2C1008573
6 · The paper itself

Abstract

aimsTo investigate factors affecting the quality of life of parents of children with spina bifida and examine how family resilience mediates between parental depression and quality of life.

designCross-sectional study.

methodsSecondary data analysis was performed using first-year data from a five-year spina bifida cohort project (2022-2026) in South Korea. The study included 162 parents of children aged 4-12 years with spina bifida. Data were collected using the Korean version of the Family Resiliency Scale, the Center for Epidemiologic Studies Depression Scale, and the WHO Quality of Life Scale.

resultsFactors were found to have a statistically significant influence on the quality of life of parents of children with spina bifida: the child's need for enemas, parental stress, parental depression, and family resilience. Baron & Kenny's mediation analysis and bootstrap analysis in SPSS further confirmed that family resilience plays a mediating role between parental depression and quality of life. The indirect effect of parental depression on quality of life through family resilience was statistically significant, with a 95% confidence interval of [-0.2615, -0.0516].

conclusionThe quality of life of parents with children with spina bifida is significantly influenced by both their child's daily symptom management and their psychological health. Family resilience plays a positive mediating role between parental depression and quality of life. IMPLICATIONS FOR THE PROFESSION AND/OR PATIENT CARE: These findings support a two-track approach to family resilience building programs and the development of core intervention strategies to enhance the quality of life in spina bifida families. REPORTING

methodThis study adhered to Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) guidelines. PATIENT CONTRIBUTION: There was no direct patient involvement in the study design, data collection, or analysis.

Indexed as

ParentsQuality of LifeResilience, PsychologicalSpinal DysraphismAdultChildChild, PreschoolCross-Sectional StudiesDepressionFemaleHumansMaleMiddle AgedRepublic of Koreacaregiverdepressionfamily resiliencemediationquality of lifespinal dysraphism

Identifiers

PMID40377248
PMCPMC12810600

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.