ArticleThe Journal of adolescent health : official publication of the Society for Adolescent Medicine2025
Are Adolescents Sensitive About Sensitive Data? Exploring Student Concerns About Privacy, Confidentiality, and Data Use in Health Research.
Article in The Journal of adolescent health : official publication of the Society for Adolescent Medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- Digital Behavior Change Interventions for Digital Overuse: Scoping Review of Current Approaches and Emerging AI-Enabled Systems.Journal of medical Internet research · 2026Article
- Is simulation always a safe learning environment? Anxiety and social anxiety symptoms in first-year medical students during simulated patient encounters.BMC medical education · 2026Article
- Intersectional inequalities in childhood maltreatment and adolescent emotional problems in England: a random-coefficient MAIHDA analysis.Epidemiology and psychiatric sciences · 2026Article
- Weight concern and desire for weight loss support in adolescents: Results from a large cross-sectional school survey.JCPP advances · 2026Article
- The prevalence of eating difficulties in children and young people in England: A large, cross-sectional school survey.JCPP advances · 2026Article
- Better Design, Better Engagement, Better Data: Adolescents' Insights for Improving Health Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Breaking barriers in health surveillance: privacy-preserving techniques for tracking vaccine hesitancy and disease outbreaks in Pakistan.Frontiers in public health · 2026Article
- Regular cannabis use and promotive attitudes among diverse adolescents in the United States: The role of age and intersecting social positions.Drug and alcohol dependence · 2025Article
- Talking mental health - study protocol for a cluster-randomized controlled trial of mental health prevention in elementary schools in Germany.Frontiers in psychology · 2025Article
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeWe quantitively explored adolescents' concerns about privacy, confidentiality, and data use in health research and their potential impact on the accuracy of self-report data.
methodsWe analyzed data from 17,729 secondary school students who participated in the 2023 OxWell Student Survey. The survey assessed 5 concerns about privacy, confidentiality, and data use and asked students whether these concerns impacted the accuracy of their answers. We calculated the proportions who (a) endorsed each concern and (b) reported inaccuracies associated with their concern(s). We then examined associations of concerns and self-reported inaccuracies with nonresponse and score distributions on sensitive measures of mental illness (depression/anxiety and disordered eating) and adversity (child maltreatment) using logistic regression.
results46.0% (8,160/17,729) of students endorsed ≥1 concern, and of these, 29.2% (2,379/8,160) reported associated inaccuracies. Relative to boys, concerns were more common amongst gender diverse adolescents (adjusted odds ratio [aOR] = 5.71, 95% confidence interval [CI] 4.40-7.48), gender nondisclosing adolescents (aOR = 4.36, 95% CI 3.62-5.26), and girls (aOR = 2.52, 95% CI 2.36-2.69), with smaller differences in self-reported inaccuracies. Students with self-reported inaccuracies were significantly more likely to have nonresponse on the 3 measures of mental illness and adversity (aORs = 1.53-3.38), whilst score distributions on those measures varied substantially according to whether students reported concerns. DISCUSSION: Concerns about privacy, confidentiality, and data use were common amongst student participants, as were self-reported inaccuracies. Substantial differences in nonresponse and score distributions on sensitive measures highlight potential impacts of these concerns. Co-designing and implementing strategies to address these concerns might help to support evidence-based decision-making by improving representativeness and data quality in adolescent health research.
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